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Our Policy Approach 

LeadingAge’s policy approach begins with LeadingAge members—providers—thousands of people working at life plan communities, assisted living, memory care, nursing homes, affordable housing, adult day centers, PACE programs, home care and hospice agencies, and other settings on the front lines of care and services. We maintain close communication with LeadingAge members, including holding face to face conversations at LeadingAge national and state conferences across the country, listening to members’ policy challenges, and considering solutions together. Our policy platform emerges from those conversations.

The policy platform guides LeadingAge advocacy on Capitol Hill and with the federal government in Washington, D.C., and in state capitols around the nation. The planks on the platform allow us to make quick decisions and take swift action on the issues that matter most across the continuum of aging services.

For 2024, the primary focus of our daily advocacy work includes:

  • Ensuring that a qualified, committed workforce is available to work in aging services by expanding domestic and international pipelines and training opportunities.
  • Achieving the right balance between regulation and autonomy in nursing homes and enabling them to be funded, staffed, and structured to provide person-centered, high-quality post-acute and long-term services and supports (LTSS) to residents.
  • Halting the implementation of CMS’s proposed staffing standards until there are enough workers available and adequate funding is provided to pay them.
  • Ensuring an adequate supply of housing for older individuals across the income spectrum and that needed support services are available in all housing settings.
  • Assuring significant expansion of programs that reflect research for housing as a platform for health services and supports, and smart preservation of affordable senior housing.
  • Supporting aging services providers so they can thrive in Medicare and Medicaid managed care environments and deliver innovative, integrated care.
  • Protecting reimbursement for providers across funders and across the continuum of care.
  • Creating a well-developed, high-quality continuum of home and community-based services (HCBS) that complements informal caregiving for older individuals.
  • Ensuring financing for older individuals who need LTSS.
  • Realizing the full integration of hospice and palliative care services into the continuum of care with appropriate reimbursement and reasonable regulation.
  • Promoting the creation of a White House Office on Aging Policy.

Policy action is dynamic and full of disruption, a lesson reinforced by the pandemic years. While our approach and engagement on certain issues may change—as needs emerge, conversations occur, bills are introduced, rules and guidance are proposed, and other events take place—LeadingAge’s values and priorities are constant.

LeadingAge Advocacy Goals

  • Advance policy that promotes the availability of adult day services across funding streams, including Medicaid, Medicare, Older American Act programs, and Veterans Affairs (VA).
  • Protect existing adult day providers from restrictive interpretation of the home and community-based settings final rule to ensure ongoing access to adult day services for participants in Medicaid programs.
  • Promote the ability of states to provide relief to safety net adult day providers through their Medicaid programs.
  • Ensure that LTSS models from the Center for Medicare and Medicaid Innovation are inclusive of all settings in the home and community (e.g., home health and personal care, adult day other day-based services, PACE services) and provide the supports (e.g., transportation) needed to facilitate inclusion of these provider types and settings.
  • Promote federal rulemaking that ensures access to and quality of HCBS for beneficiaries while minimizing provider burden.
  • Oppose block grant and per capita cap policies.
  • Stabilize the adult day services field and make sure providers can reopen and recover following the COVID-19 pandemic.

THE ISSUE

Home and community-based services (HCBS) providers are at an inflection point, and adult day services providers are especially at risk. Over the last decade, significant improvement has been made in the availability of and public investment in these critical LTSS providers. As with most providers, however, the end of the public health emergency stalled additional federal investment. Further, enforcement of the home and community-based settings final rule (HCBS rule) has threatened access for Medicaid participants.

Contracting and referrals with all payers remains challenging as knowledge of the services provided by adult day programs are not well understood by policy makers. Challenges accessing services through Medicaid and Veteran’s Affairs, along with sparse Medicare Advantage plan coverage of adult day (as a supplemental service) leaves many older adults in need of care they can’t access or afford.

With the March 17, 2023, compliance date for the HCBS rule, some states have been cautious as adult day programs reopen. Providers face mounting challenges with compliance as states threaten to terminate Medicaid provider agreements, putting access to Medicaid funded services at risk. Ensuring that HCBS is included in federal funding conversations and common-sense approaches to regulatory compliance are fundamental to making sure these services are available for older adults over the next decade and beyond.

ADVOCACY ACTION 2024

118th Congress

  • Medicaid FMAP: We support an increase in the Federal Medical Assistance Percentage (FMAP) for Medicaid HCBS by ten points to ensure states have the funds needed to expand and sustain these services. HCBS Relief Act of 2023–S.3118
  • Benefit categories: We ask Congress to revise Medicaid and put HCBS (including waiver and state plan services and PACE) on equal footing with nursing homes and make HCBS a mandatory Medicaid benefit. HCBS Access Act –S.762 – Senator Bob Casey (D-PA); H.R. 1493 – Congresswoman Debbie Dingell (D-MI-6)
  • Protecting access: We support making permanent key provisions that ensure access to HCBS, including the federal spousal impoverishment protections for Medicaid HCBS and the Money Follows the Person program.
  • Adult Day coverage under Medicare: We believe Congress should amend the Medicare program to make adult day services available to beneficiaries.
  • Appropriations: We support increasing funding for key provisions that support HCBS, including Older Americans Act services.
  • Better Care Better Jobs Act: S.100 – Senator Bob Casey (D-PA); H.R. 547 – Congresswoman Debbie Dingell (D-MI-6)

Executive Branch

  • HCBS Settings Rule: Ongoing advocacy with CMS on reasonable interpretation of compliance with the HBCS settings rule to ensure access to Medicaid funded HCBS.
  • Provider Relief Fund: We will advocate that any additional allocations made from the Provider Relief Fund (or similarly situated future funding streams) include adult day services providers.
  • Protect Medicaid financing: We oppose any Medicaid waiver or rulemaking that reduces federal funding to the program, as these could ultimately jeopardize HCBS access. To that end, CMS should not approve or and should rescind waivers that allow per capita caps/block grant financing, work requirements, or unnecessary coverage/enrollment barriers. CMS should not propose rulemaking like the 2019 Medicaid Fiscal Accountability Regulation (MFAR).
  • Innovation Center models: We will closely monitor CMMI action to ensure that home and community-based services of all types are included as part of the proposed LTSS Innovation Fund and in other models.
  • VA Coverage of Adult Day Services: We will closely monitor developments with the VA Community Care Network program and other VA initiatives that provide HCBS and advocate for our members and the veterans they support.
  • Transportation and Medicaid: We support the maintenance of current rulemaking that assigns non-emergency medical transportation (NEMT) as a mandatory Medicaid benefit.
  • Supplemental Services under Medicare Advantage: We will encourage CMS to continue broadening adult day services available in Medicare Advantage and work with plans on implementation.

ACTIONS YOU CAN TAKE NOW

  • Visit the Advocacy Action Center to let your Representative and Senators know you support the expansion and preservation of programs and services for older adults.
  • Host Congress in Your Neighborhood to help your Members of Congress understand how policies impact providers and residents.
  • Stay up to date with LeadingAge’s adult day work through our Adult Day, PACE, and HCBS page.
  • Engage with other adult day providers through the LeadingAge Adult Day Network and other regular national, regional, and state meetings. Contact Georgia for more information.

LeadingAge Advocacy Goals

  • Address the severe shortage of affordable senior housing by expanding, preserving, and improving housing assistance for older adults.
  • Improve resident outcomes by using affordable housing as a platform to connect residents to services and supports, including by expanding service coordination, addressing mental and behavioral health needs, and bridging the digital divide.
  • Improve asset management processes and oversight in federal housing programs to support the operation of high-quality affordable senior housing.
  • Build climate resilience in affordable housing by expanding energy efficiency, green retrofitting, and disaster preparedness initiatives for the country’s housing stock.

THE ISSUE

There is a severe shortage of affordable housing for older adults with low incomes. In 2021, 2.35 million older adult renter households with very low incomes (incomes below 50% of area median) spent more than half of their incomes for housing, a 77% (1.02 million household) increase since 2009. Because of the scarcity of affordable and available housing for very low-income households, only 36.5% of eligible older adult households receive housing assistance. Waiting lists for assistance are often years long.

Meanwhile, homelessness among older adults is increasing rapidly. Between 2019 and 2021, the number of older adults in shelters and transitional housing increased by 10,000, to more than 60,000, and the number of older adults experiencing chronic homelessness increased by 73%, a number HUD described as “alarming.”

ADVOCACY ACTION 2024

118th Session of Congress

Secure robust Fiscal Year 2025 HUD appropriations funding:

  • Expand access to affordable senior housing.
    • Provide $600 million for new capital advances and operating assistance, including service coordination, for approximately 6,200 new Section 202 Supportive Housing for the Elderly homes nationwide, including in rural areas.
    • Allow capital advances for new Section 202 properties to be paired with project-based Section 8 operating subsidy.
    • Provide $50 million for about 5,000 new Older Adult Special Purpose Vouchers, at least 50% of which could be project-based.
  • Preserve and improve HUD-assisted housing.
    • Provide full funding for Section 8 Project-Based Rental Assistance (PBRA) and Project Rental Assistance Contract (PRAC) renewals, including funding that reflects increased costs for insurance, staffing, utilities, service coordination, and internet connectivity.
    • Expand ongoing budget adjustment options for Section 202/PRAC properties, including by implementing market-driven adjustments option such, as Operating Cost Adjustment Factors (OCAFs).
  • Ensure RAD for PRAC success.
    • Allow converted RAD for 202 PRACs to access a Rent Comparability Study (RCS) every five years, in addition to annual OCAFs, and to adjust initial rent-setting to improve financial viability of the converted property.
    • Provide $10 million for RAD for PRAC conversion subsidy to ensure the successful and long-term preservation of 202/PRAC homes, including adjusted Preservation Rent Increase eligibility thresholds that allow feasible access for properties in need.
  • Connect HUD-assisted residents to the services and supports they need to age in the community. 
    • Provide $125 million for the renewal of existing service coordinator grants.
    • Provide $100 million for 400 new, three-year service coordinator grants and expand eligibility to 202/PRAC communities.
    • Provide a $31 million increase for new, budget-based service coordinators in Project-Based Section 8 properties.
    • Further improve the FCC’s Affordable Connectivity Program to allow for whole-building enrollment for HUD-assisted communities.
    • Expand resources to install building-wide internet in HUD-assisted communities, including funding to prevent a sunset of the Affordable Connectivity Program.
    • Provide resources to equip affordable housing staff with Mental Health First Aid training to support resident mental and behavioral health.

Enact the Expanding Service Coordinators Act (H.R. 5177) to:

  • Authorize an additional $100 million a year for five years for 400 new grant-funded service coordinators in HUD-assisted multifamily housing.
  • Authorize $37 million for 150 three-year service coordinator grants via a new program administered by HHS’s Health Resources and Services Administration.
  • Make service coordinators eligible for federal student loan forgiveness.

Expand and improve the Low-Income Housing Tax Credit program.

  • Enact improvements, including those in the Affordable Housing Credit Improvement Act (AHCIA) (H.R. 3238 and S. 1557), to:
    • Increase state Housing Credit allocations by 50%.
    • Fix Right of First Refusal issues that continue to rob nonprofit housing providers of their housing credit-financed developments.
    • Lower the threshold of Private Activity Bond financing required to trigger the maximum amount of 4% Housing Credits from 50% to 25%.
    • Enable the Housing Credit to better serve households with extremely low incomes.
    • Enact solutions to bring service coordinators to Housing Credit communities.

Prevent and end homelessness among older adults.

  • Fully fund HUD’s homeless assistance programs.
  • Improve data collection on homelessness among older adults.
  • Improve partnerships between Continuums of Care and Area Agencies on Aging.

Support efforts to improve accessibility of the nation’s housing stock.

  • Support HUD’s Older Adult Home Modification program.
  • Expand resources to increase the accessibility of the nation’s housing stock.
  • Support legislation that requires universal design and visitability, including the Visitable Inclusive Tax Credits for Accessible Living (VITAL) Act (S. 1377 and H.R. 3963).

Support the expansion of affordable housing programs to meet the needs of all households, including individuals in the long-term care workforce.

Executive Branch

Expand and Preserve Affordable Senior Housing Options:

  • Significantly expand the supply of federally subsidized housing for older adults with low incomes and older adults experiencing homelessness, including by issuing timely funding opportunities for new Section 202 capital advances and operating subsidy.
  • Preserve and improve the existing supply of affordable housing, including through improvements to the Rental Assistance Demonstration (RAD) to achieve improved initial rent-setting, better energy efficiency, and long-term financial viability.

Cultivate Connected, Service-Enriched Housing:

  • Support service-enhanced housing, including by improving HUD’s Service Coordinator grant administration, leveraging Service Coordinator reporting data, clarifying Service Coordination property eligibility, and implementing Supportive Services funding for Section 202/PRAC communities.
  • Increase internet connectivity in affordable housing, including by adjusting HUD rules and by partnering with other federal agencies, like the Federal Communications Commission (FCC) and the National Telecommunications and Information Administration (NTIA). for infrastructure and internet service resources.
  • Expand access to affordable housing by updating criminal background and credit check rules, and by updating Section 504 rules pertaining to accessibility requirements and disability protections.

Support Improved Housing Operations:

  • Streamline asset management, including through improved budget increase and contract renewal processes at HUD.
  • Update HUD oversight mechanisms, including by implementing feasible changes to housing inspections and by updating portfolio oversight.

Climate Resilience in Senior Housing:

  • Emphasize energy and water efficiencies throughout the senior housing portfolio to improve climate outcomes and better leverage HUD funding.
  • Improve property resilience by continuing access to green retrofit funding.
  • Increase equity in climate resilience while improving the federal approach to disaster preparedness and response.

ACTIONS YOU CAN TAKE NOW

  • Visit the Advocacy Action Center to let your Representative and Senators know you support the expansion and preservation of affordable housing programs for older adults.
  • Host Congress in Your Neighborhood to help your Members of Congress understand how policies impact affordable senior providers and residents.
  • Stay up to date with LeadingAge’s affordable senior housing work through our Affordable Housing page.
  • Engage with other affordable senior housing providers through the LeadingAge Housing Network (and its five working groups), as well as other regular national, regional, and state meetings. Contact Linda or Juliana for more information.

ADDITIONAL RESOURCES

LeadingAge Advocacy Goals

  • Advance policy that establishes funding models to provide family sustaining wages reflective of the professionalism and skill of those working in long-term care and home and community-based services.
  • Increase pipeline of available healthcare professionals working in long-term care and home and community-based services, through expanded domestic training programs and increased immigration opportunities.
  • Reduce barriers for direct care professionals to complete training and certification testing.
  • Increase opportunities for aging services providers to support direct care professionals through advance career opportunities, career pathways and supported pipeline programs.
  • Work with a broad group of stakeholders to develop a feasible, public long-term care financing system.
  • Oppose staffing standards (as proposed for nursing homes) for which there is no evidence, no workforce, and no funding. We advocate for policies that would assure minimum standards are based on clear, definitive evidence of the levels and types of staffing that impact quality.

THE ISSUE

The United States is undergoing a dramatic demographic shift. The U.S. the population age 65 and older now tops 54.1 million, accounting for nearly 16% of the population, equaling one in every seven Americans.  This, combined with the impacts of changes of the US Healthcare system in the wake of the COVID-19 Public Health Emergency (PHE) caused a dramatic shift in staffing patterns and an alarming rise in burnout across health care professions and aging. While shortages were projected prior to the pandemic, they have reached a crisis point in its wake. The collision of demographic and workforce demands a robust and collaborative response from government, stakeholders, caregivers, and the older adults we serve.

LeadingAge is committed to leading change through bold, innovative, and creative policies that expand and strengthen the caregiving workforce at all levels.

ADVOCACY ACTION 2024

118th Congress

  • Work with Congress to commission the following reports: examining the scope of practice/roles of nurses and direct care professionals across long-term care and home and community-based settings, examining the feasibility of creating a standardized national online training and testing platform for direct care professionals.
  • Advocate for legislation that would permit skilled nursing facilities to act as accredited/official testing locations for skills testing for Certified Nurse Aide students.
  • Advocate and advance policies that provide a pathway to citizenship, and permanent residency status for long-term care and home and community-based services workers. H.R. 3359 – Dignity Act Reintroduced in the House, H.R. 3734 – Essential Workers for Economic Advancement Act, S. 255/ H.R. 1325 – Asylum Seeker Work Authorization Act of 2023
  • Advance policy proposals that expand visa classifications to significantly increase or completely remove caps for nurses and direct care professionals. S. 3291- EAGLE Act of 2023
  • Collaborate with LeadingAge state partners to advocate for updated Medicare and Medicaid reimbursement models that will support the actual cost of care and social support services.
  • Work with Congress and the Administration to expand Civil Monetary Penalties (CMP) grant eligibility to include funding for technology integrations aimed at addressing labor shortages.
  • Advocate for payment parity for occupational and physical therapy across acute care and rehabilitation services to expand opportunities for students to complete training hours in post-acute care settings.
  • Advance legislation that supports incentives and expands access to training and education programs. H.R. 547 Better Care Better Jobs, H.R. 496 Promoting Employment and Lifelong Learning (PELL) Act, H.R. 4328 National Nursing Shortage Task Force Act
  • Expand access to Pell Grants for short term training, such as Certified Nurse Aide, Medication Aide, and other similar programs. – H.R. 6585, the Bipartisan Workforce Pell Act, H.R. 4720 Direct Creation, Advancement, and Retention of Employment (CARE) Opportunity Act
  • Support legislation that expands the use of apprenticeship programs. H.R. 2851 National Apprenticeship Act of 2023
  • Reduce barriers to workforce training opportunities for students interested in entering the healthcare workforce. – H.R. 6655, A Stronger Workforce for America Act, S. 2840 – Primary Care and Health Workforce Expansion Act

Executive Branch

  • Work with the administration to direct the Department of Education to create approved Career Technical Education (CTE) programs for high school students (16+) allowing the student to earn credit for working in long-term care and home and community-based services.
  • Work with Center for Medicare and Medicaid Services to develop a pilot program to permit public and non-profit Certified Nurse Aide (CNA) training programs to apply for Civil Monetary Penalties (CMP) funding to support training and wrap around supports for students during their initial training program.
  • Work with the Department of Education and nurse stakeholder groups to strengthen relationships between nurse training programs and local long-term care and home and community-based services by highlighting post-acute and community care settings in curriculum and maintaining clinical placement agreement with multiple skilled nursing facilities and home and community-based services programs.
  • Expand Civil Monetary Penalties (CMP) grant eligibility to include funding for technology integrations aimed at addressing labor shortages.
  • Work with the administration and Congress to develop low-cost loan programs for providers seeking to build/acquire housing for employees.
  • Advocate for incentive payment program for providers offering clinical placements to nursing students.

ACTION YOU CAN TAKE NOW

  • Visit the Advocacy Action Center to let your Representative and Senators know you support all actions that will support the growth of domestic and international pipelines for workers, provide meaningful wages for workers, and offer training and advancement opportunities.
  • Host Congress in Your Neighborhood to help your Members of Congress understand how the workforce shortage and policies to address it impact providers and residents.

ADDITIONAL RESOURCES

LeadingAge Advocacy Goals

(NOTE: Assisted living and memory support services are not federally funded or regulated. However, they are affected by some federal policies. It is critical to note that these communities respond to local need, are regulated by states, and are not federally funded or regulated. We work closely with LeadingAge state partners to support relevant state-specific advocacy. In this section of LeadingAge’s 2024 Policy Priorities, we simply pull together the elements of the priorities that are most relevant to assisted living and memory support providers.)

  • Lead the Quality in Assisted Living Collaborative (QALC) in the creation of voluntary guidelines in relevant topical areas.
  • Seek proactive protections for assisted living and memory support providers to help offset the tremendous rising costs of providing higher acuity care amidst crippling workforce and occupancy shortages, including protections specifically related to liability and bankruptcy protections.
  • Understand and advise members on the current framework of varying state regulations and standards governing assisted living and memory care.
  • Work with members and stakeholders to explore ideas to bring more affordable assisted living options to the “middle market” that is currently underserved.
  • Raise legislators’ awareness of the increasing need for behavioral and mental health supports and services for older adults as they age in place in congregate settings, and advocate on a federal level for funding or programs that train and prepare employees and organizations to address these needs.

THE ISSUE

With close to one million assisted living residents nationwide, assisted living and memory support providers are faced with many of the issues that all aging services providers face this year—workforce shortages, severe occupancy vacancies, rising acuity of patient care, behavioral and mental health program gaps, inadequate Medicare/ Medicaid reimbursement and more.

Assisted living and memory support providers have struggled with the financial sustainability of their operations because of variations in occupancy levels, coupled with the costs of rising acuity levels of resident care and the increased wage expenses required to fill crippling staffing shortages.

Quality of care and resident safety are perennial challenges that have only been compounded by the other pressures AL and memory support providers face. LeadingAge is looking to ensure a constructive, future-focused action plan to promote smart approaches to quality in assisted living and memory care without the need for federal regulation.

ADVOCACY ACTION 2024

118th Congress

  • Telehealth. We support solutions to improve access to telehealth services in assisted living residences.
  • Professionalize the Workforce. We support treating LTSS professionals with respect and dignity. LTSS settings must feature greater standardization of competency-based training requirements and education needed to prepare the frontline workforce to deliver quality care.
  • Behavioral Health: Geriatric Social Worker Education, Recruitment and Retention Program. We support the inclusion of expanded programs to recruit, educate, and retain geriatric social workers that encourage more social workers to join and specialize in the aging services field.

Executive Branch

  • Office of State and Community Energy Programs (SCEP). We support the implementation of the Inflation Reduction Act and its energy efficiency goals for residential housing programs, and encourage the SCEP to work together with aging services providers to facilitate the adoption of energy-saving technologies and equipment.
  • Medicare Advantage Reforms. We support efforts to revise Medicare Advantage law to reduce administrative burden on providers and create some minimum expectations of plans as they contract with providers to ensure a more even playing field. Specifically, we support the “Improving Seniors’ Timely Access to Care Act” that was passed as part of a larger bill, the Health Care Price Transparency Act (HR 4822), which would modernize and bring more transparency to the prior authorization processes utilized by MA plans.
  • Internal Revenue Service (IRS). We support the ongoing claims-submission and -receipt process established by the Employee Retention Credit and will continue to work with IRS-issued guidance to enable eligible members to claim funds available to them through this program.
  • Department of Labor (DOL). We advocate against the adjustment of overtime exemption thresholds or the setting of wage minimums that create an unrealistic and unsustainable cost burden for aging services providers – unless there is an increase in reimbursement rates to cover the additional costs.

ACTIONS YOU CAN TAKE NOW

  • Visit the Advocacy Action Center to let your Representative and Senators know you support our assisted living and memory support initiatives.
  • Host Congress in Your Neighborhood to help your Members of Congress understand how policies impact the residents and workforce of assisted living or memory support communities, as well as their families.
  • Stay up to date with LeadingAge’s affordable senior housing work through our Assisted Living page.
  • Engage with other affordable senior housing providers through the LeadingAge Assisted Living Network and other regular national, regional, and state meetings. Contact Janine or Dee for more information.

ADDITIONAL RESOURCES

LeadingAge Advocacy Goals

  • Promote evidence-based policies for behavioral health services, including mental health and substance use prevention and treatment, for older adults and the aging services workforce.
  • Promote new or expanded funding sources or allocations for behavioral or mental health services that specifically improve access, treatment or care for older adults and the aging services workforce.
  • Raise legislators’ awareness of the increasing need for behavioral and mental health supports and services, as well as whole-person wellness, for older adults and the aging services workforce.
  • Collaborate with stakeholder groups, including government agencies and advocacy associations, to promote, support, fund, advocate for, or provide education on the need for evidence-based behavioral health and substance use intervention programs for older adults and the aging services workforce.

 THE ISSUE

By 2030, 72.1 million people aged 65 or better will reside in America, and one in four of those people will live with either a mental health or substance use disorder. Of those, only 4 – 28% will have access to supportive services to address these disorders. Older people of color have even less access to reliable mental health resources. And, reportedly, illegal and recreational drug abuse, including opioid use, is increasing among older adults.

The World Health Organization, among many authorities on the subject of mental health, substance abuse and aging, offers a long list of risk factors that predispose an older adult to mental illness or substance abuse; equally lengthy are the known negative physiological impacts of such disorders on older adults. The cumulative effects of lifespan circumstances, stressors, losses, and post-retirement malaise certainly top the list, but also mentioned are several LeadingAge-championed causal factors such as ageism, social isolation and loneliness, elder abuse and traumatic experiences. Shortened life span, along with higher mortality from many common maladies (heart disease, hip fractures, diabetes and cancer, as examples,) are some of the poor health outcomes attributed with mental illness in older adults – and 2-3 times more Medicare/Medicaid dollars are spent on individuals than those without mental illnesses.

While there are known mental health and substance use interventions that work for older adults, many wide gaps in behavioral health and substance abuse services and supports exist across the continuum of care for this vulnerable population. LeadingAge seeks to narrow this gap by advocating for funding, services and programmatic supports that will expand access to the older adults most in need of proven, effective mental or substance abuse interventions. We include in that advocacy work the people who care for these vulnerable older people: both paid and family caregivers.

Advocacy Action 2024

118th Congress

  • Support Newly Enacted Workforce Training Programs. Support the funding and full implementation of the HUD workforce training and education related to the identification of behavioral health, mental health and substance use challenges in older adults, including referral to appropriate intervention programs, and the creation of a wellness culture in the health care professions through the Dr. Lorena Breen Act.
  • Promote Expanded Medicare Supports for Behavioral/ Mental Health and Substance Use Interventions. Promote the extension of the Consolidated Appropriations Act of 2023 and the 2008 Mental Health Parity and Addictions Equity Act to increase the enrollment of mental health professionals in Medicare and expand mental health benefits in the Medicare Advantage programs.
  • Geriatric Social Worker Education, Recruitment and Retention. We support the inclusion of expanded programs to recruit, educate, and retain geriatric social workers that encourage more social workers to join and specialize in the aging services field.
  • Geriatric Psychiatrist Education, Recruitment and Retention. We support the inclusion in expanded programs for funding to recruit, educate and retain geriatric psychiatrists, with the goal if encouraging more geriatric psychiatrists to join the aging services field.

Executive Branch

  • Support efforts to expand funding to CDC’s Suicide Prevention Program.
  • Collaborate with HHS – SAMHSA to allocate grant funding from the Administration’s Unity Agenda platform towards behavioral health, mental health and substance misuse interventions that specifically support older adults and the aging services workforce.
  • Support CMS’s efforts to close long-standing gaps in Medicare substance use disorder coverage through the full implementation of the CY 24 changes to the Physician’s Fee Schedule.
  • Support HUD in launching and expanding training for affordable housing staff to recognize behavioral and mental health challenges and refer residents for care.

ACTIONS YOU CAN TAKE NOW

  • Visit the Advocacy Action Center to let your Representative and Senators know you support behavioral health and substance misuse intervention programs for older adults and their caregivers.
  • Host Congress in Your Neighborhood to help your Members of Congress understand how policies impact senior providers and residents.

ADDITIONAL RESOURCES

  • LeadingAge: Behavioral Health and Dementia QuickPATH
  • LeadingAge: Mood/ Behavior/ Medically Related Social Services QuickPATH

LeadingAge Advocacy Goals

  • Promote actions to address abuse and neglect and expand support for programs developed by aging services organizations to fight elder abuse and neglect.
  • Promote equity in access to elder justice programs.
  • Support adoption of the patient safety model for identifying, addressing, and reporting elder abuse in congregate settings and HCBS programs.
  • Advocate to include abuse identification and training in educational requirements for nursing home and assisted living administrators, geriatricians, physicians, social workers, and RNs.
  • Examine ways to incorporate abuse prevention training for home care, case managers, service coordinators, and residential counselors.
  • Increase funding for training and hiring aging services employees at all levels.
  • Collaborate with the Global Ageing Network to coordinate the response to elder abuse and neglect.
  • Promote equity in access to elder justice programs.

THE ISSUE

Elder abuse is estimated to affect one in ten older adults; these include our residents, our clients, our tenants, and the people waiting to be served by LeadingAge members. Increased isolation in recent years exacerbated conditions that underlie abuse including isolation, increased reliance on potentially abusive caregivers, fear and loss of independence, along with the increased difficulty that programs designed to prevent elder abuse have experienced.  Elder abuse directly affects providers of aging services when the people we serve are victimized by financial exploitation and physical and psychological abuse. LeadingAge has been a leader in affirmatively addressing elder abuse in the broader community, as well as in our settings. Leading the fight against elder abuse is part of our ethical obligations and underscores our mission to be the trusted voice for aging, our vision of an America freed from ageism, through our promise to inspire, serve, and advocate.

Advocacy Action 2024

118th Congress

  • Elder abuse related legislation. We will provide education and assistance to address elder justice issues to House and Senate committees and work with Members of Congress concerned about these issues.
  • Measurements for loneliness and isolation. We support the Improving Measurements for Loneliness and Isolation Act (S. 3260) to convene a working group of experts and stakeholders to provide recommendations for standardizing the measurements and definitions of loneliness and isolation — unifying private and public efforts to study, understand and combat them.

Executive Branch

  • ACA Reinvestment Grants. We support the use of CMS fines to help train direct care workers in culture change.
  • Elder Justice Coordinating Council. We will continue to provide guidance on integrating work done by LeadingAge providers with Council activities at the local, state, and federal level.
  • CMS Training. We will engage with CMS on training in abuse prevention.
  • Promote best practices. Advance promising evidenced based programs and funding models that promote restorative justice processes, where possible, to restore relationships and family connections.

ACTIONS YOU CAN TAKE NOW

ADDITIONAL RESOURCES

LeadingAge Advocacy Goals

  • Ensure that older adults are able to receive health care and long-term services and supports in their homes and communities if they prefer to do so.
  • Protect providers from restrictive interpretation of the home and community-based settings final rule to ensure ongoing access for participants.
  • Advance policy that promotes the availability of HCBS across funding streams, including Medicaid, Medicare, Older Americans Act, Veterans Affairs, and private pay.
  • Secure funding for innovation in HCBS.
  • Support increased availability of PACE services to older adults through regulatory and statutory flexibility, education, and investment at the federal and state levels.
  • Ensure that LTSS models from the Center for Medicare and Medicaid Innovation include HCBS.
  • Promote federal rulemaking that ensures access and quality HCBS beneficiaries while minimizing provider burden.
  • Preserve the ability and discretion of states to regulate assisted living.
  • Address racial disparities in access to and quality of HCBS.
  • Oppose block grant and per capita cap policies.

THE ISSUE

Home and community-based services (HCBS) providers are at an inflection point. Federal barriers limit the growth and availability of HCBS, including the optional status of HCBS (waiver, state plan, PACE) as Medicaid benefit categories, limits and variations on benefits within state Medicaid programs, and the lack of an HCBS-centered model from the CMS Innovation Center.

The home and community-based settings rule (HCBS rule) compliance date of March 17, 2023, caused additional strain as some states are considering terminating provider agreements for non-compliance. This threat is putting access to certain HCBS like adult day and assisted living for older adults at particular risk.

Workforce is a key priority for our members, yet providers offering services such as home health, hospice, personal care, among others, in recipient homes face unique and unexpected challenges that often include hoarding, difficult family dynamics, under-resourced communities and increasing incidents of threats to personal safety. Staff, willingly take on these challenges as part of providing individual care in the field without the immediate support of coworkers and supervisors. The CMS proposal that would require 80% of Medicaid rates for three HCBS to be passed through via worker compensation further complicates these challenges and poses a threat to quality by eroding budgets for staff training and clinical supervision above mandatory minimums that support staff confidence and retention.

Advocacy Action 2024

118th Congress

  • Medicaid FMAP: We support an increase in the Federal Medical Assistance Percentage (FMAP) for Medicaid HCBS by 10 points to ensure states have the funds needed to expand and sustain these services. HCBS Relief Act of 2023–S.3118
  • Benefit categories. We ask Congress to revise Medicaid and put HCBS (including waiver and state plan services and PACE) on equal footing with nursing homes and make HCBS a mandatory Medicaid benefit. HCBS Access Act –S.762 – Senator Bob Casey (D-PA); H.R. 1493 – Congresswoman Debbie Dingell (D-MI-6)
  • Protecting access. We support making permanent key provisions that ensure access to HCBS, including the federal spousal impoverishment protections for Medicaid HCBS and the Money Follows the Person program.
  • Adult Day Coverage under Medicare. We believe Congress should amend the Medicare program to make adult day services available to beneficiaries (e.g., FFS and managed care). See H.R. 4063 from the 116th Congress.
  • Appropriations. We support increasing funding for key provisions that support HCBS, including Older Americans Act services.
  • Better Care Better Jobs ActS.100 – Senator Bob Casey (D-PA); H.R. 547 – Congresswoman Debbie Dingell (D-MI-6)

Executive Branch

  • Protect Medicaid financing. We oppose any Medicaid waiver or rulemaking that reduces federal funding to the program, as these could ultimately jeopardize HCBS access. To that end, CMS should not approve and/or rescind waivers that allow per capita caps/block grant financing, work requirements and unnecessary coverage/enrollment barriers.
  • Innovation Center models. We will closely monitor CMMI action to ensure that home and community-based services of all types are included as part of the proposed LTSS Innovation Fund and in other models.
  • VA Coverage of HCBS. We will closely monitor developments with the VA Community Care Network program and other VA initiatives that provide HCBS and advocate for our members and the veterans they support.
  • Transportation and Medicaid. We support the maintenance of current rulemaking that assigns non-emergency medical transportation (NEMT) as a mandatory Medicaid benefit.
  • Supplemental Services under Medicare Advantage. We will encourage CMS to continue broadening HCBS availability in Medicare Advantage and work with plans on implementation.

ACTIONS YOU CAN TAKE NOW

  • Visit the Advocacy Action Center to let your Representative and Senators know you support the expansion and preservation of HCBS programs and services for older adults.
  • Host Congress in Your Neighborhood to help your Members of Congress understand how policies impact providers and beneficiaries.
  • Stay up to date with LeadingAge’s HCBS work through our Adult Day, PACE, and HCBS page.
  • Engage with other HCBS providers through the LeadingAge HCBS Network and other regular national, regional, and state meetings. Contact Georgia for more information.

ADDITIONAL RESOURCES

LeadingAge Advocacy Goals

  • Ensure appropriate reimbursement methodology and rates for home health services in fee-for-service and Medicare Advantage.
  • Advocate for reasonable home health and home care regulations to allow quality, community-based care without unnecessary burdens.
  • Work for meaningful inclusion of home care services in Medicare Advantage supplemental benefits with efficient processes and fair payment.
  • Promote a vision for the future of home health and home care services and their role in the continuum of post-acute, long-term, and end-of-life care, including making home health more accessible to people whose condition may not improve but could avoid decline with appropriate services.

THE ISSUE

Home health services are a vital component of the health care continuum, both as an important discharge destination for hospitals as well as providing care and therapies in the community that prevent hospitalizations. In 2023, 3 million Medicare beneficiaries received home health services in the U.S. However, the staffing crisis as well as sharp cuts in reimbursement have forced many agencies to decline new referrals knowing they do not have the staff to adequately serve new patients. Compounding these issues is the growth of Medicare Advantage enrollment and the often-inadequate payment home health agencies receive from MA that make supporting these beneficiaries nearly impossible.

2023 continued the contradictory public policy debate around care in the home. The public at large and policymakers continued their rallying cries to increase access to care in the home and community and support of home health services. On the other hand, policymakers also continued their drumbeat regarding overpayment to Medicare home health. Proposed and looming temporary retrospective payment adjustments loom large over LeadingAge home health members and those they serve based on CMS’s interpretation of the Bipartisan Budget Act of 2018’s budget neutrality requirements. Though our advocacy in 2022 and 2023 helped to forestall monumental proposed payment cuts, the future is still uncertain with regard to payment and as a result, access to care to the critically vulnerable populations our members serve every day. Home health members are experiencing workforce shortages, as are all LeadingAge provider members. Unlike retail or other business sectors, aging services providers cannot raise their prices. They are reliant on Medicare and Medicaid dollars to provide high-quality care. We will continue to advocate for policies that allow both the goal of expanded home and community-based care and appropriate reimbursement to co-exist.

Home health agencies must be recognized and reimbursed for their capabilities to coordinate and collaborate with other care providers, ensuring that the patient receives appropriate, high-quality care regardless of the setting or location in the evolving health care delivery system.

Advocacy Action 2024

118th Congress

  • Home health reimbursement. We support legislative efforts that seek to ensure transparent and evidence-based approaches to Medicare reimbursement in the Patient-Driven Groupings Model.
  • Reimbursement for telehealth visits. We support legislative efforts that allow virtual visits to be reimbursed by Medicare with appropriate guardrails and visit equivalency between in-person and virtual visits.
  • Reinstate Medicare rural add-on payments. We support legislative efforts that would make permanent the add-on for services to rural patients.
  • Expand clinician roles and responsibilities. We support legislative efforts to expand the authority of advanced practice nurses, physician’s assistants, occupational therapists, and other members of the interdisciplinary care team to meet the growing needs of older adults seeking home health services.
  • Support the home care workforce. We support legislative efforts to ensure that home care workers earn at least a living wage and have opportunities for professional development. We support efforts to increase the pool of qualified applicants domestically and internationally.
  • Reform Medicare Advantage. LeadingAge will also support efforts to revise Medicare Advantage law to reduce administrative burden on providers and create minimum expectations of plans as they contract with providers to ensure a more even playing field.
  • Create innovation in Medicare and Medicaid home health benefits. LeadingAge supports opportunities to reform, enhance, and expand home health benefits.
  • Meaningful use. Aging services providers were not included in previous funding efforts that supported health care providers’ transition to electronic health records (EHR) systems that contain the medical and treatment histories of patients. We will continue to advocate for funding and payment incentives, including incentives tied to quality, to assist aging services providers in accessing EHR technology that is interoperable with that of their physician and hospital partners and peers and encourage the bi-directional exchange of information.
  • Immigration reform. We promote and support legislative efforts that expand the international pipeline of aging services staff to enter and work in the U.S.

Executive Branch

  • Patient-Driven Groupings Model (PDGM). We will provide feedback to CMS on member’s experience to accuracy and adequacy of PDGM.
  • Home Health Value Based Purchasing: We will monitor HHVBP and engage with CMS as needed to help our members with the requirements of this new payment system.
  • Home Health CY2025 rule. We will review and provide comments on the CY2025 Medicare home health wage rule.
  • IMPACT Act. Continue advocacy to slow the pace of the Medicare unified post-acute prospective payment system model development work of the Department of Health and Human Services and the Centers for Medicare and Medicaid Services to reflect relevant data collection not skewed by the experiences of the COVID-19 pandemic.
  • Advocate for the use of data from new claims codes documenting home health virtual visits. Home health providers are allowed to use virtual visits as part of their documented plan of care. We will advocate for the analysis of the recently created G-Codes for these encounters for a variety of purposes including quality measurement.
  • New models of integrated care. Engage the Center for Medicare and Medicaid Innovation in the further development of a new demonstration or model(s) that would allow post-acute providers and/or LTSS providers to be accountable and financially at-risk for the care of a population or an episode of care.
  • Quality measures. We will promote activities to establish quality measures that are evidence-based and accurately reflect quality care. We ensure home health agencies are not negatively impacted under the Home Health Value-Based Payment program or Home Health Quality Reporting Program payments.
  • Survey and certification. We call on CMS to improve consistency and accuracy in the survey and certification process including education and oversight of state surveyors and accrediting bodies. We will propose alternatives focused on a collaborative approach to quality improvement and utilization of enforcement remedies that reflect a just culture.
  • Medicare Care Compare. We will provide feedback on the additions or changes to the Medicare Care Compare site to ensure important information is clearly displayed and consumers are not misled by icons and formatting that prioritize information that does not accurately capture home health quality information.
  • Medicare Advantage supplemental services. We will encourage CMS to continue broadening the home-based care availability in Medicare Advantage and work with plans on implementation.
  • We will monitor and engage with MedPAC as needed regarding their home health recommendations including a proposal to adjust and lower home health payment as well as engaging them on updating their definition of access to home health services.
  • We will monitor and engage with MACPAC as needed regarding their recommendations around Medicaid Home Health.
  • Family caregiving. LeadingAge recognizes the critical role family caregivers play in the care of older adults in the community. We will continue to monitor and engage on the U.S. Department of Health and Human Services, Administration of Community Living’s (ACL) National Strategy to Support Family Caregivers.

ACTIONS YOU CAN TAKE NOW

  • Visit the Advocacy Action Center to let your Representative and Senators know you support home health care funding and access for older adults.
  • Host Congress in Your Neighborhood to help your Members of Congress understand how policies impact home health providers and beneficiaries.
  • Stay up to date with LeadingAge’s home health work through our Home Health page.
  • Engage with other home health providers through the LeadingAge Home Health Network and other regular national, regional, and state meetings. Contact Katy for more information.

ADDITIONAL RESOURCES

LeadingAge Advocacy Goals

  • Promote a vision for the future of hospice and palliative care services and their role in the continuum of post-acute, long-term, and end-of-life care including advocating for meaningful benefit reform to enable this vision.
  • Ensure appropriate reimbursement to provide quality end-of-life care.
  • Promote access to and use of appropriate palliative and end-of-life care in all health and long-term care settings.
  • Work for reasonable hospice regulations and oversight to allow quality, home and community-based care without unnecessary burdens.
  • Support policies that help hospice and palliative care providers recover from the trauma of the pandemic through their grief and bereavement programs.
  • Work for meaningful inclusion of home care services in Medicare Advantage supplemental benefits with efficient processes and fair payment.

THE ISSUE

2023 culminated in extensive, unprecedented program integrity efforts to support hospice. Media attention on bad actors as well as the number of Medicare dollars being spent on hospice led to enhanced scrutiny from policymakers. While some of this scrutiny was warranted, advocacy will need to continue to ensure that LeadingAge member hospices are not swept up in a regulatory environment that makes it even more difficult for them to operate and reduces access for patients and families. We will continue to advocate for appropriate oversight—including working to ensure a better audit process. We also continue work on advocacy around the newly created hospice Special Focus Program so that the program achieves its goals of improving hospice quality.

2023 was also a year in which we had substantive discussions around reforming the hospice benefit for the future—and these conversations will continue in 2024.

In addition, hospice and palliative care organizations are focused on opportunities that will facilitate the transition to value-based payment, the continuing demonstration of the “carve in” of hospice to the Medicare Advantage program and continued regulatory pressures including how to promote quality care via a revised survey process and continued pressure from audits. Community-based palliative care continues to find its footing given the realization by payers and patients alike that an extra layer of support at any point during a serious illness promotes quality and reduces unwanted utilization.

Hospice members are experiencing workforce shortages, like all LeadingAge provider members. Unlike retail or other business sectors, aging services providers cannot raise their prices. They are reliant on Medicare and Medicaid dollars to provide high-quality care. The need for robust advance care planning and a workforce trained in palliative care principles was, unfortunately, underscored during a pandemic that took a disproportionate toll on older adults and those with serious illness. Palliative care professionals, especially in inpatient settings, were in high demand and this skillset needs to be ingrained into health care professionals’ training.

Moving forward, the role of bereavement and grief supports services will be critical to communities as they recover from trauma. Finally, if as anticipated, one result of the pandemic is a continued surge in the desire for home-based care, hospice and community-based palliative care providers have a large role to play in supporting high quality care at home.

Advocacy Action 2024

118th Congress

  • Hospice Benefit Reform. We will work on changes to the hospice benefit to promote access to care, reduce bad actors, promote sustainable reimbursement, and ensure the viability of high-quality providers into the future.
  • Supporting the hospice and palliative care workforce. We support legislative efforts to ensure that all aging services workers, including in hospice and palliative care earn at least a living wage and have opportunities for professional development. We support efforts to increase the pool of qualified applicants domestically and internationally.
  • Advance Medicare Advantage reforms. LeadingAge will support efforts to revise Medicare Advantage law to reduce administrative burden on providers and create some minimum expectations of plans as they contract with providers to ensure a more even playing field. This will be important to hospice providers as they prepare for a “carve in” and engage in other service lines.
  • We support allowing hospice face-to-face recertification to take place via telehealth on a permanent basis and allowing utilization of telehealth in routine home care when clinically appropriate.
  • Advance care planning. We support expanding access to advance care planning in the Medicare program through elimination of statutory barriers and inclusion of more clinical professionals in payment.
  • Training in hospice and palliative care. We support investments in training in hospice and palliative care across all disciplines.
  • Advocate for robust community-based grief and bereavement supports. Advocate for the development of policies that support hospice and palliative care providers in their efforts to support their communities as they recover from trauma (e.g., expanded funding for community grief and bereavement programs, development of standards to measure what constitutes a “good’ bereavement program).
  • Expanded use of nurse practitioners and physician assistants in hospice. We support a legislative fix that would allow nurse practitioners and physician assistants to certify the terminal prognosis as clinically appropriate. We also support seeking legislative fixes to the statute to clarify the role of physician assistants (PAs) in hospice and to allow PAs to provide face-to-face encounters.
  • Expand access to hospice respite care. We support expanding access to hospice respite care through allowing respite to occur in the home.
  • Expand hospice to include a “room and board” level of care. we support creating a hospice “room and board” level of care that allows for patients to die outside their homes without qualifying for GIP or inpatient respite care.
  • Support appropriate palliative care reimbursement. we support efforts to assign appropriate payment under Medicare Part B for palliative care services as well as defining a standard set of services for part B.
  • Meaningful use. Aging services providers were not included in previous funding efforts that supported health care providers’ transition to electronic health records (EHR) systems that contain the medical and treatment histories of patients. We will continue to advocate for funding and payment incentives, including incentives tied to quality, to assist aging services providers in accessing EHR technology that is interoperable with that of their physician and hospital partners and peers and encourage the bi-directional exchange of information.
  • Immigration reform. We promote and support legislative efforts that expand the international pipeline of aging services staff to enter and work in the U.S.

Executive Branch

  • Hospice and Medicare Advantage. We will continue to engage with the Center for Medicare and Medicaid Innovation (CMMI) on the Value-Based Insurance Design (VBID) Model – Hospice Track on improvements to the model and provide education for our members.
  • New models of payment and integrated care. LeadingAge will continue to engage CMMI to shape care and payment models that offer integrated care delivery and create opportunities within existing and new models for hospice and palliative care providers to play a meaningful role that ensures a share of the financial gains achieved. We will also monitor and support members participating in alternative payment models, including the new GUIDE model.
  • Quality measure development. We will continue to work with CMS and their contractors on the finalization of the Hospice Outcomes and Patient Evaluation (HOPE) tool and corresponding quality measures. We will continue to engage in other quality improvement activities including improving the CAHPS survey and Five-Star Rating.
  • Advocate for the creation of claims codes or modifiers to document hospice virtual visits. Hospice providers are utilizing telehealth for routine home care during the pandemic. We will advocate for the creation of claims codes or modifiers that will allow for the analysis of these encounters for a variety of purposes including quality measurement.
  • Advocate for use of chaplain codes in documenting hospice visits. Three codes were recently authorized for use to Medicare claims to document chaplain visits. We will advocate for the documentation of these codes in claims for hospice services as well as advocating for the inclusion of chaplains as an eligible professional for purposes of the Hospice Visits in Last Days of Life (HVLDL) Measure.
  • Advocate for change in definition of a hospice “day.” For both continuous home care and the visits in the last days of life measure, advocate for the addition of a modifier that allows hospices to indicate when the service has occurred over the course of two days.
  • Oversight reforms. We will engage with the CMS Center for Clinical Standards and Quality and the Center for Program integrity as well as the Office of Inspector General as they continue in their program integrity efforts. We will also engage specifically around burdensome audits.
  • Survey and Certification. We will actively advocate for changes to the Special Focused Program for hospices finalized in the CY2024 Home Health Final Rule. We call on CMS as part of this process to improve consistency and accuracy in the survey and certification process including education and oversight of state surveyors and accrediting bodies. We will propose alternatives focused on a collaborative approach to quality improvement and utilization of enforcement remedies that reflect a just culture.
  • Medicare Care Compare. We will provide feedback on the additions or changes to the Medicare Care Compare site to ensure important information is clearly displayed and consumers are not misled by icons and formatting that prioritize information that does not accurately capture hospice quality information.
  • Hospice wage rule. We will review and provide comments on the FY 2025 Medicare Hospice wage rule.
  • We will monitor and engage with MedPAC as needed regarding their hospice research agenda and current and future recommendations.
  • Family caregiving. LeadingAge recognizes the critical role family caregivers play in the care of older adults in the community. We will continue to monitor and engage on the U.S. Department of Health and Human Services, Administration of Community Living’s (ACL) National Strategy to Support Family Caregivers.

ACTIONS YOU CAN TAKE NOW

  • Visit the Advocacy Action Center to let your Representative and Senators know you support hospice funding and access for older adults.
  • Host Congress in Your Neighborhood to help your Members of Congress understand how policies impact hospice providers and beneficiaries.
  • Stay up to date with LeadingAge’s home health work through our Hospice page.
  • Engage with other hospice providers through the LeadingAge Hospice Network and other regular national, regional, and state meetings. Contact Katy for more information.

ADDITIONAL RESOURCES

LeadingAge Advocacy Goals

(NOTE: Life Plan Communities (LPCs), sometimes referred to in state statute as Continuing Care Retirement Communities (CCRCs), are multi-level provider systems where independent living, assisted living, memory care, and nursing home care often are offered on the same campus.  Many include home care, home health, hospice, and palliative care as well.  It is critical to note that CCRCs are regulated in some states and are not federally regulated as a comprehensive entity; however, SNFs that are a part of LPCs are federally regulated by CMS, and ALs that exist within an LPC are state-regulated. We work closely with LeadingAge state partners to support relevant state-specific advocacy for LPCs.)

  • Support and monitor state-level regulatory activities that enable LPCs to grow, expand, diversify or improve communities and services for older adults, that mitigate or reduce the financial and reporting burdens for LPCs, or that offer realistic consumer protections that reward operational excellence in LPCs.
  • Identify and support federal funding or legislative activities that enable LPCs to expand into alternative services and supports, such as Continuing Care at Home, middle market projects, HCBS and satellite communities.
  • Collaborate with federal government agencies such as the IRS, OSHA, DOL, NFTA and others to ensure that new guidance or programs that impact LPC operations are fair and feasible from an implementation perspective.
  • Identify and advocate for federal financial protections that stabilize and strengthen the unique cost and revenue structures of the LPC model, such as insurance cost cap protections, cash flow protection loans, liability mitigation, and bankruptcy protections.
  • Advocate for policies to ensure that payments/reimbursements for Medicare and Medicaid services, including those delivered through managed care, adequately cover the services provided.
  • We oppose staffing standards (as proposed for nursing homes) for which there is no evidence, no workforce, and no funding. We advocate for policies that would assure minimum standards are based on clear, definitive evidence of the levels and types of staffing that impact quality.
  • We work to advance initiatives that will reduce barriers to recruiting and retaining qualified, well-trained staff, including increased Medicaid and Medicare reimbursement that will allow nursing homes within LPCs to invest in staff wages, benefits, and supports.
  • Support legislative efforts to ensure that the LPC workforce earns a living wage and have opportunities for professional development and support legislative efforts to increase the pool of qualified applicants both domestically and internationally.
  • Engage in advocacy opportunities that address consumer protection advocacy efforts that impact LPCs.
  • Raise legislators’ awareness of the increasing need for behavioral and mental health supports and services, as well as whole-person wellness, for older adults in congregate community settings.

THE ISSUE

The Life Plan Community (LPC), in many instances, is a representative cross-section of the aging services continuum of providers. Operating in an increasingly competitive and nuanced environment, LPC providers are adopting a two-pronged strategy of consolidation and diversification to survive and thrive. Already, the LPC model required of its operators a proficiency and versatility in disparate and differently regulated aging services, including independent living, assisted living, nursing homes, and memory care. Some LPC providers have expanded their portfolios into home and community-based services, hospice, and palliative services, managed care programs, adult day programs, and affordable housing. Other LPC organizations are exploring alternative and niche markets to expand both their mission reach and margin cushion, including satellite campuses, university based LPCs, middle market projects, continuing care at home programs, and early acceptance programs.

While facing many of the issues that all aging services providers face—workforce shortages, behavioral and mental health program gaps, inadequate Medicare/ Medicaid reimbursement, and cost pressures due to inflation—Life Plan Communities further struggle with the financial sustainability of their operations because of their multi-faceted nature. Some LPCs have eliminated services, downsized or closed their nursing homes, consolidated with other providers, or pursued corporate restructuring in order to preserve their organizations and survive the myriad cost and market pressures that buffeted this provider group in 2023.  Financial metrics that evaluate the collective model’s solvency reflect divergent trends this fiscal year: internal operational competency paired with significant vulnerability to external fluctuations in the market.  Consumer advocacy activities, greater state-level attention to regulatory oversight, and legal and risk exposures have left LPCs strained in their capacity and ability to attend to what feels like, for many, challenges ‘on all fronts.’

Advocacy Action 2024

To review the full array of Congressional and Executive Branch advocacy actions that affect specific segments of Life Plan Communities, see individual service line policy priorities.

118th Congress

  • Strengthen the workforce. Support CNA training, geriatric grant programs, grants to recruit and retain direct care workers, and immigration reforms that will increase the supply of Life Plan Community workers.
  • Professionalize the Workforce. We will work to promote policies that treat LTSS workers with respect and dignity. LTSS settings must feature greater standardization of competency-based training requirements and education needed to prepare the frontline workforce to deliver quality care.
  • Support liability protection. We will continue to work with a coalition of national associations and state association partners to enact state civil liability protections for aging services providers relating to COVID-19 claims. Nearly half the states have enacted some sort of protections, and we are still advocating for protections on the federal level.
  • Medicare Advantage Reforms. We support efforts to revise Medicare Advantage law to reduce administrative burden on providers and create minimum expectations of plans as they contract with providers to ensure a more even playing field. Specifically, we support the “Improving Seniors’ Timely Access to Care Act” that was passed as part of a larger bill, the Health Care Price Transparency Act (HR 4822), which would modernize and bring more transparency to the prior authorization processes utilized by MA plans.
  • We support legislation to improve access to telehealth services in nursing homes.
  • Geriatric social worker education, recruitment, and retention program. We support the inclusion of expanded programs to recruit, educate, and retain geriatric social workers to encourage more social workers to join and specialize in the aging services field.
  • Adult day coverage under Medicare.We believe Congress should amend the Medicare program to make adult day services available to beneficiaries (e.g., FFS and managed care).
  • Immigration reform. We promote and support legislative efforts that expand the international pipeline of aging services staff to enter and work in the U.S.

Executive Branch

  • Internal Revenue Service (IRS). We support the ongoing claims-submission and -receipt process established by the Employee Retention Credit and will continue to work with IRS-issued guidance to enable eligible members to claim funds available to them through this program.
  • Department of Labor (DOL). We advocate against the adjustment of overtime exemption thresholds or the setting of wage minimums that create an unrealistic and unsustainable cost burden for aging services providers unless accompanied by reimbursement increases.
  • Office of State and Community Energy Programs (SCEP).We support the implementation of the Inflation Reduction Act and its energy efficiency goals for residential housing programs, and encourage the SCEP to work together with aging services providers to facilitate the adoption of energy-saving technologies and equipment.
  • Alternative Payment Models. We engage in activities geared toward the development of alternative payment models, such as the Unified Post-Acute Care Prospective Payment System Technical Expert Panel.

ACTIONS YOU CAN TAKE NOW

  • Visit the Advocacy Action Center to let your Representative and Senators know you support legislation that enables relevant components of Life Plan Communities to provide quality, consumer-responsive services.
  • Host Congress in Your Neighborhood to help your Members of Congress understand how policies impact the residents and workforce of Life Plan Communities.
  • Stay up to date with LeadingAge’s LPC work through our LPC page.
  • Engage with other LPC providers through the LeadingAge LPC Network and other regular national, regional, and state meetings. Contact Dee for more information.

ADDITIONAL RESOURCES

LeadingAge Advocacy Goals

  • Propose and support LTSS reforms for older adults that include key provisions: low-income seniors must have housing and housing must include services as needed; new financing approaches must be considered, and communities must be prepared to include increasing numbers of older adults.
  • Promote equitable LTSS financing reform to ensure that people at all economic levels (including “middle income”) are able to access services when they need them.
  • Support the evolution of an aging-services continuum that builds on current successes and helps providers keep moving toward systems and services consumers want.
  • Create policies that recognize that the consumer long-term care experience involves using many types of services; policies should enable consumers to transition to different types of services within the continuum.
  • Support and complement the work of family caregivers.

THE ISSUE

In 2018, 52 million people aged 65 and older lived in the U.S., 16% of the population. In 2026 the oldest baby boomers will turn 80. The older population in 2030 is projected to be more than twice as large as 2000, growing from 35 million to 73 million and representing 21% of the U.S. population. (Older Americans 2020: Key Indicators of Well-Being (agingstats.gov) Complicating the increasing numbers of older people, are economic declines in the over-65 group. Older individuals did not fare well economically during the pandemic, for example. Even with the relatively large 2023 cost of living increase in Social Security, many older adults face financial hardship.

The demographic trends are evolving in a changing environment that includes climate change, pandemics, changes in housing and transportation patterns, rapid technology advancements, evolving attitudes toward work, and growing inequity based on race, gender, age, income, and geography.

Most people in the United States do not save or plan for their own likely future need for LTSS, and the federal government has yet to offer a program.

Family caregivers provide much of that care, and LTSS insurance has shown limited success. Medicare does not cover ongoing LTSS needs. Medicaid finances some LTSS for people who have very limited incomes and assets, and for those whose health and LTSS expenditures drive them into poverty.

Individuals at the top of the income spectrum may be able to self-finance care. Those in the vast and increasing “middle market” have few options to meet their LTSS needs. While many LTSS benefit proposals have been discussed, few address financing. Increasingly, states—disappointed with the lack of federal attention—are discussing LTSS financing proposals of their own.

While most people prefer to remain in place, at least until they need extensive supports, few reform proposals to date have taken into account that many low-income people have no real options to receive extensive services in any place other than a nursing home.

LTSS reform proposals typically focus on benefit plans and to a much lesser extent, financing. However, they must also take into account housing and age-ready communities. To receive home and community-based services, individuals must have a home. Any viable LTSS reform proposal must start with provisions to provide housing for people who qualify for public housing but do not receive it, and proposals must ensure that people in that housing have the ability to receive some services that help them remain in the community. Finally, proposals should address the infrastructure of communities across the country to ensure they support aging and multigenerational populations.

Advocacy Action 2024

118th Congress

  • Comprehensive LTC Financing Reform. We support equitable, flexible long-term care financing reform. It must include a strategy to cover the expenses that assures viability. This may include payroll deductions, similar to the Washington State Long-Term Care program. We support front end or catastrophic proposals and we support public private partnerships to cover the costs.
  • Small steps. We will identify and support “small steps” toward long-term care financing reform, concurrent with working on comprehensive reform.
  • Expansions in existing programs. We support bills that would expand access to home and community-based or residential services, make more low-income senior housing available, and support the LTSS workforce.
  • Educate policymakers. We will continue to build awareness of the need for LTSS after age 65 and promote proposals to address these needs, especially proposals that include a financing strategy, housing plus services, and community infrastructure building. We will work with any Members of Congress interested in these ideas.

Executive Branch

  • Encourage federal agencies (e.g., HHS, Treasury, OMB, White House) to continue developing and supporting LTSS financing reform proposals and conversations.
  • Supplemental Benefits. We support efforts to encourage plans to include supplemental benefits that include some home and community-based services as well as targeted services and supports for those with chronic illness. We advocate for these benefits and their corresponding eligibility requirements to be clearly communicated to beneficiaries. We seek to ensure providers of all sizes have an opportunity to be part of these networks.
  • Medicaid Managed Care and LTSS. Monitor Medicaid managed care regulations relating to LTSS.
  • New Models of Integrated Care. Engage the Center for Medicare and Medicaid Innovation in further development of new demonstration projects or models that will allow post-acute providers and/or LTSS providers to be accountable and financially at-risk for the care of a population or an episode of care.

ACTIONS YOU CAN TAKE NOW

  • Visit the Advocacy Action Center to let your Representative and Senators know you support legislation (comprehensive or partial) to offer programs that cover long-term services and supports for more individuals.
  • Host Congress in Your Neighborhood to help your Members of Congress understand the importance of policies to create meaningful long-term care financing reform.
  • Stay up to date with LeadingAge’s LTC financing reform work through our LTSS Financing page.

ADDITIONAL RESOURCES

LeadingAge Advocacy Goals

  • Advocate for Medicare and Medicare Advantage (MA) policies and reforms that ensure beneficiary access to equitable care and services, preserve aging service providers’ financial viability, and identify ways to streamline administrative requirements.
  • Seek greater transparency and monitoring of MA plan prior authorization and other coverage determinations, including denials, appeals and the results through required reporting of data by service type.
  • Pursue policies that prohibit MA plans from using algorithms or artificial intelligence tools deny care.
  • Advocate to establish a channel through which providers can report MA plan non-compliance issues to ensure plans are appropriately covering Medicare A and B services for Medicare beneficiaries.
  • Create value-based payment opportunities for aging service providers within risk-based models including MA and Accountable Care Organizations (ACOs).
  • Seek opportunities for aging service providers and housers to be meaningful participants in Center for Medicare and Medicaid Innovation (CMMI) models.
  • Oppose efforts that expand managed care organizations’ influence within the Medicare program.
  • Pursue new payment model demonstration(s) or opportunities within existing CMMI models that give post-acute care and long-term service and support providers the opportunity to lead by accepting both the financial risk and rewards of such models.
  • Support and advocate for policy initiatives and models that take a more holistic and integrated approach to addressing the needs of older adults and align incentives for all participating providers.
  • Support initiatives to expedite beneficiary access to care by streamlining or eliminating onerous utilization management requirements.
  • Support efforts to ensure supplemental benefit offerings are clearly communicated to beneficiaries and caregivers when evaluating their plan options and ensure once enrolled, beneficiaries know how to access these benefits.
  • Pursue broad reimbursement policies that ensure adequate funding for aging services providers across payers and actuarial soundness. Advocate for policies to ensure that payments/reimbursements under Medicare and Medicaid managed care plans adequately cover the services provided and offer opportunities for providers to enter into contracts.
  • Support policy changes that seek to deliver fully integrated services to dual eligibles such as is offered by PACE programs.

THE ISSUE

Aging services providers in many parts of the country have reached a tipping point where managed care—Medicare Advantage (MA), Medicaid managed care, and CMMI payment reform initiatives—is the dominant payer. Medicare Advantage enrollment reached 51% nationally in 2023, with penetration rates as high as 80% in some areas of the country. Under these programs, providers often face inadequate payments on top of increased expectations and administrative burden (often presented as take it or leave it), all of which is threatening the viability of aging services providers and beneficiary access to needed care. MA plans are embracing their ability to expand supplemental benefits into home and community-based services as well as some broader, non-medical services if structured flexibly.

On a parallel track, the Center for Medicare and Medicaid Innovation (CMMI) has been expanding its deployment and testing of advanced alternative payment models over the past decade. In October 2021, CMMI published a new strategic direction for its next decade of work, which aims to move all providers into value-based models and beneficiaries into accountable care relationships by 2030. Post-Acute Care and Long-Term Services and Supports (PAC-LTSS) providers have largely been excluded from leading and taking on financial risk under these models though some limited opportunities have been created in recent years through the ACO REACH program (2022) and the GUIDE dementia model (2023). As a result, these providers have seen little to no financial benefit by participating in existing models as partners. With no ability to lead a CMMI model, interested providers, who can accept financial risk, are increasingly pursuing the development of their own provider-led Special Needs Plans. LeadingAge has actively engaged CMMI around developing opportunities for PAC-LTSS and will continue to participate in efforts with the National Association of Accountable Care Organizations (NAACOs) and other stakeholders to further opportunities for nursing homes and other providers to benefit from value-based payment arrangements nested within the ACO and similar accountable relationships.

In 2017, LeadingAge painted a picture of what integrated services could and should look like for older adults including the fundamental elements of any model. We continue to push for this vision in our Congressional and CMMI conversations. In the end of 2023, a bipartisan group of members of the Senate Finance Committee outlined their own goal to ensure dual eligibles receive fully-integrated care and services both clinically and administratively. LeadingAge is supporting this drive towards integration and looks forward to the introduction of legislation in the coming Congress to achieve this vision.

Advocacy Action 2024

118th Congress

LeadingAge will pursue legislation to preserve access to care for beneficiaries, ensure financial viability of providers, reduce their administrative burden when contracting with plans, establish some minimum expectations of plans related to their interactions with providers, and ensure compliance and enforcement of MA requirements to ensure a more even playing field for providers.

  • Repeal MA non-interference clause or other legal barriers, which prevent CMS from establishing rate floors and/or goals for value-based payment adoption by MA/SNP plans for post-acute care providers.
  • Require plans to report their provider payment rates to CMS.  Congress should require MA plans to report their provider payment rates by provider type to CMS and require CMS to annually evaluate the adequacy of those rates to ensure Medicare beneficiary access to various Medicare services in both traditional Medicare and MA.
  • Establish MA whistleblower/compliance line. Expand current or create new MA complaint and compliance line allowing providers to report issues with plans. This offers another layer of protection for beneficiaries.
  • Reduce the administrative burden on providers participating in MA. We support the “Improving Seniors’ Timely Access to Care Act” introduced by the 118th Congress and passed as part of a larger bill, the Health Care Price Transparency Act (HR 4822) that would modernize and bring more transparency to the prior authorization processes utilized by MA plans.  
  • Monitor artificial intelligence legislation. As Congress pursues legislation to establish parameters for the use of artificial intelligence in health care, we will seek to ensure policies prohibit AI from overriding health care professional decisions and assessments of beneficiaries’ care and service needs.
  • Support legislation to ensure integrated services.  LeadingAge has a vision for integrated services for older adults and as such, we will support legislation designed to achieve this vision for dual eligibles and other older adults. To this end, we have provided input into draft legislation on a dual eligible integration program for which bipartisan legislation is expected to be introduced in 2024.
  • Ensure beneficiaries’ ability to return to Medigap with guaranteed issue. Allow Medicare beneficiaries who enroll in MA plans to return to FFS and a Medigap plan with guaranteed issue as long as they have continuous coverage so beneficiaries don’t lose this option once enrolled in MA.
  • Protect CMMI program and funding. We seek to preserve the ability of the Center for Medicare and Medicaid Innovation to test new care delivery and payment models where aging services providers can play a meaningful role.
  • Support efforts to expand Medicare benefits. There have been efforts to expand the standard Medicare benefit to include services such as vision, hearing and dental, which would provide more parity with services offered through MA plans. LeadingAge also supports efforts to include other services such as adult day services that have a direct impact on health care outcomes for Medicare beneficiaries through a more holistic approach to addressing needs and are proven to reduce other care costs.  

Executive Branch

  • Seek regulatory reforms of the MA program to ensure necessary protections now that MA is the predominant model for receiving Medicare benefits. Identify and pursue new language to be included in the Medicare and Medicaid managed care regulations, including the Medicare Managed Care Manual, that clarifies certain provider rights and plan obligations in their interactions with providers, assures beneficiary access to medically necessary services, and seeks to streamline and/or standardize required elements of participation in these programs to reduce administrative burden.
  • Ensure provider payment adequacy. Pursue efforts to have CMS establish a provider rate floor that plans must pay unless the plan can negotiate a pay-for-performance or other value-based arrangement with the provider. Alternatively, HHS could require plans to pass along a certain percentage of any rate increase received by the plans annually.
  • Ensure access to quality providers within MA plans. Pursue regulatory changes adding provider quality as a factor in determining a plan’s network adequacy to preserve a beneficiary’s ability to select high quality providers for their care.
  • Prohibit MA plans from excluding providers due to size. Pursue an any willing provider clause that would allow all providers to participate in plan networks if they are willing to accept contract terms and wish to be in network. This would prevent plans from excluding small providers due to size.
  • Administrative simplification. Pursue changes in MA policies to streamline routine processes such as credentialing, prior authorizations, and other health information exchange to reduce administrative burden on providers and plans. Such policies may include establishing a single electronic clearinghouse/portal for submitting credentialing (e.g., national provider directory), standardizing prior authorization requests across plans, and similar measures.
  • Ensure provider payments adjust for cost of living, inflationary increases and/or new regulatory requirements. Require plans to have a clause in their contracts that requires them to adjust payment rates to reflect external pressures, such as updating rates in accordance with inflation and other factors similar to the Medicare FFS payment rule process.
  • Limit egregious audit reviews by plans. Establish parameters for the number and type of claims that can be audited and limit the timeframe in which a plan can retroactively seek repayment so that these decisions are made quickly and provider administrative burden is reduced.
  • Establish timely prior authorization (PA) timelines for plans or require plans to staff their PA process 24/7/365 with qualified personnel. Establish and enforce penalties for plans who do not meet the required timeframes resulting in care delays.
  • Duals Integration. Support and pursue efforts to both clinically and financially integrate care and services for dual eligibles to better address their needs.
  • Supplemental benefits. We support efforts to encourage plans to include supplemental benefits that include home and community-based services as well as targeted services and supports for those with chronic illness. We support efforts to ensure beneficiaries’ awareness of and access to these benefits. We seek to ensure providers of all sizes have an opportunity to be part of these plan networks to deliver these services.
  • MA Regulatory Updates. Monitor and comment on Medicare Advantage annual proposed rules governing MA policies and payments.
  • Medicaid Managed Care and LTSS. Monitor Medicaid managed care regulations relating to LTSS.
  • New models of payment and integrated care. LeadingAge will continue to engage CMMI to shape care and payment models that offer integrated care delivery and create opportunities within existing and new models for post-acute providers, housers and/or LTSS providers to play a meaningful role that ensures a share of the financial gains achieved.

ACTIONS YOU CAN TAKE NOW

  • Visit the Advocacy Action Center to let your representative and senators hear your voice on the impacts of Medicare Advantage on older adults and on access to Medicare services.
  • Host a Congress in Your Neighborhood (leadingage.org)  in your community to help your Members of Congress understand how managed care plans are impacting your residents and your bottom line.
  • Stay up to date with LeadingAge’s managed care work through our Managed Care page.
  • Engage with other providers through the LeadingAge Managed Care Network and other regular national, regional, and state meetings. Contact Nicole for more information.

ADDITIONAL RESOURCES

LeadingAge Advocacy Goals

  • Advocate for the availability of aging services across the continuum in Medicare and Medicaid.
  • Ensure that regulations governing the Medicare and Medicaid programs promote high-quality care and are not burdensome to providers.
  • Oppose block grant and per capita cap policies in Medicaid.
  • Ensure that state Medicaid rates paid to nursing homes are sufficient to cover the costs of care.
  • Ensure appropriate reimbursement to provide quality end-of-life care.
  • Advance policy that promotes the availability of HCBS across funding streams, including Medicare and Medicaid.
  • Advance managed care arrangements, reimbursement, and operational policies that enable aging services providers to meet their mission of serving older adults.

THE ISSUE

Medicare and Medicaid are critical revenue sources for most aging services providers and provide coverage to older adults who need post-acute care and/or long-term services and supports. These programs provide coverage to more than 100 million Americans, including millions of older Americans. The COVID-19 pandemic has underscored just how critical Medicare and Medicaid are and has unearthed challenges providers and consumers alike face as they interact with both. As detailed in other sections of these policy priorities, many provider types interact with Medicare and/or Medicaid differently and have their own needs. Across the board, however, preserving, strengthening, and improving these systems are vital to realizing an aging services system that meets the needs of every older adult. To achieve that, LeadingAge supports specific policy actions from both Congress and the executive branch as described below.

Advocacy Action 2024

118th Congress

  • Staffing Standards. We oppose staffing standards for which there is no evidence, no workforce, and no funding. We advocate for policies that would assure minimum standards are based on clear, definitive evidence of the levels and types of staffing that impact quality.
  • We work to advance initiatives that will reduce barriers to recruiting and retaining qualified, well-trained staff, including increased Medicaid and Medicare reimbursement that will allow nursing homes to invest in staff wages, benefits, and supports.
  • Medicare home health reimbursement. We continue to support legislative efforts that seek to ensure transparent and evidence-based approaches to Medicare reimbursement in the Patient-Driven Groupings Model.
  • Reimbursement for home health telehealth visits. We support legislative efforts to allow Medicare reimbursement of virtual home health visits, with appropriate guardrails and visit equivalency between in-person and virtual visits.
  • Keeping key pandemic flexibilities: Support making key pandemic related telehealth provisions a permanent part of the Medicare program: permanently removing the geographic restrictions on telehealth; allowing the home to be an originating site of care beyond the public health emergency; and permanent expansion of the providers who can furnish telehealth services in both the physical and mental health arenas.
  • Benefit categories. We ask Congress to revise Medicaid and put HCBS (including waiver and state plan services and PACE) on equal footing with nursing homes and make HCBS a mandatory Medicaid benefit.
  • Protecting access to Medicaid HCBS. We support making permanent key provisions that ensure access to HCBS, including the federal spousal impoverishment protections for Medicaid HCBS and the Money Follows the Person program.
  • Adult Day Coverage under Medicare. We believe Congress should amend the Medicare program to make adult day services available to beneficiaries (e.g., FFS and managed care).
  • Medicaid rates. We will continue to work with state partners and members to ensure that state Medicaid rates paid to aging services providers are sufficient to cover the costs of care.
  • Protect CMMI program and funding. We seek to preserve the ability of the Center for Medicare and Medicaid Innovation to test new care delivery and payment models where aging services providers can play a meaningful role.
  • Support efforts to expand Medicare benefits. There have been efforts to expand the standard Medicare benefit to include services such as vision, hearing and dental, which would provide more parity with services offered through MA plans. We also support efforts to include other services such as adult day services that have a direct impact on health care outcomes for Medicare beneficiaries through a more holistic approach to addressing needs and are proven to reduce other care costs.
  • Reduce the administrative burden on providers of participating in MA. We support the “Improving Seniors’ Timely Access to Care Act” introduced by the 118th Congress and passed as part of a larger bill, the Health Care Price Transparency Act (HR 4822) that would modernize and bring more transparency to the prior authorization processes utilized by MA plans.
  • Support legislation to ensure integrated services. We have a vision for integrated services for older adults and will support legislation designed to achieve this vision for dual eligibles.
  • Observation Stays. We engaged with Congressional offices on the reintroduction of the Improving Access to Medicare Coverage Act (H.R. 5138) that would mandate that all time spent in a hospital, regardless of admission status, would count toward the 3-day qualifying stay required for SNF services under the Medicare benefit. The waiver of the 3-day stay requirement during COVID reinforces the lack of rationale for this restriction on Part A eligibility.
  • We will monitor and engage with MedPAC as needed regarding their recommendations related to aging services.
  • MACPAC: We will monitor and engage with MACPAC as needed regarding their recommendations related to aging services.

Executive Branch

  • Rules, guidance, other federal policy documents. We will work with CMS on Medicaid and Medicare rules and guidance documents relevant to providers across the continuum—nursing homes, PACE, home health, hospice, HCBS waiver services.
  • Protect Medicaid financing. We oppose any Medicaid waiver or rulemaking that reduces federal funding to the program, as these could ultimately jeopardize HCBS access. To that end, CMS should not approve and/or rescind waivers that allow per capita caps/block grant financing, work requirements, and unnecessary coverage/enrollment barriers.
  • Innovation Center models. We will closely monitor CMMI action to ensure that home and community-based services of all types are included.
  • Transportation and Medicaid. We support the maintenance of current rulemaking that assigns non-emergency medical transportation (NEMT) as a mandatory Medicaid benefit.
  • CMS Extension of Telehealth Flexibilities. We supported CMS’s inclusion in the Calendar Year 2024 Physician Fee Schedule Final Rule of regulations implementing the extension of various COVID-19 PHE telehealth flexibilities (in alignment with the Consolidated Appropriations Act of 2023) through December 31, 2024. We will continue to advocate for CMS to review the telehealth and technology waivers established during the PHE to identify which can be made permanent without Congressional action, including utilization of telehealth for hospice routine home care visits and flexibility in licensure requirements in the Medicare and Medicaid program.

ACTIONS YOU CAN TAKE NOW

  • Visit the Advocacy Action Center to let your Representative and Senators know that you support the expansion and preservation of Medicare and Medicaid for older adults.
  • Host Congress in Your Neighborhood to help your Members of Congress understand how policies impact providers and residents.

LeadingAge Advocacy Goals

  • Seek confirmation from the federal government that it will not pursue civil or criminal actions against providers if they allow the use of medical cannabis pursuant to state laws and regulations.
  • Support federal legislation or regulations to prohibit any federal agency interference with state medical cannabis laws.
  • Work with state LeadingAge partners, as requested, to support legislation at the state level to enact medical cannabis statutes and regulations that will allow older adults to access it under appropriate circumstances to alleviate pain and other symptoms of disease.

THE ISSUE

Medical cannabis is legal in 36 states and the District of Columbia. Under federal law, marijuana remains a Schedule I substance under the Controlled Substances Act and is illegal. There is no clarity from the federal government or agencies on whether they will pursue enforcement activities against those using medical cannabis pursuant to state laws allowing it.

Advocacy Action 2024

Executive Branch

  • Medical Cannabis Guidance. We will explore options for regulatory guidance or a memorandum from federal agencies discouraging any civil or criminal enforcement of medical cannabis usage in states where it is legal.
  • Cannabidiol (CBD) Guidance. Now that CBD is legal after the passage of the 2018 Farm Bill, we will monitor the Food and Drug Administration’s (FDA) progress on issuing regulations/guidance on the use of CBD in Medicare- and Medicaid-financed settings.
  • How Marijuana is Scheduled Under Federal Law. In October 2022 President Biden directed the Secretary of Health and Human Services (HHS) and the Attorney General to initiate a process to review how marijuana is scheduled under the federal Controlled Substances Act. We will monitor activity by HHS and the U.S. Department of Justice, Drug Enforcement Administration, and participate in aspects of the process that are open to the public, including submission of comments as appropriate, in support of our advocacy goals.

ACTIONS YOU CAN TAKE NOW

  • Visit the Advocacy Action Center to identify opportunities to let your Representative and Senators know your views on the legal use of medical cannabis by older adults.
  • Host  Congress in Your Neighborhood in your community to help your Members of Congress understand how policies related to medical cannabis affect older adults.

ADDITIONAL RESOURCES

LeadingAge Advocacy Goals

  • Seek meaningful, transformational change in the structure, care delivery, and financing of residential long-term services and supports by supporting the work of the Moving Forward Nursing Home Quality Coalition.
  • Promote initiatives to examine and address the workforce crisis and block implementation of federal minimum staffing standards. We will not support staffing standards without adequate reimbursement and assurance of policy changes that will ensure an adequate supply of applicants.
  • Advocate for reimbursement rates that are sufficient to cover the full range of costs to provide high-quality care and services including supply needs, training, and fair wages for staff.
  • Promote modernization of the survey process to include approaches that focus on resident outcomes, foster surveyor accountability, and support quality improvement.
  • Ensure regulations promote person-centered quality and support positive clinical outcomes and evidence-based best practices without adding unnecessary burden.
  • Advance a quality measurement system underlying the regulatory process that truly reflects quality care and quality of life for residents.
  • Promote a positive vision of the future of nursing homes as an integral part of the continuum of care where both residents and staff are supported to reach their fullest potential.

THE ISSUE

Nursing homes are an essential element of the long-term services and support system, serving individuals with serious functional impairments who are unable to live independently in the community. Although fewer than 4% of those over 65 will ever live in a nursing home, these settings provide treatment and care in a safe, home-like environment that supports a quality of life when aging in the community is no longer an option.

Medicaid is the primary payer for nursing home care, covering six out of ten stays, but Medicaid rates do not cover the cost of care. The pandemic further exacerbated the impact of reimbursement shortfalls stemming from inadequate Medicaid rates and a lack of comprehensive investment in long-term services and supports. As a result, the healthcare system, including nursing homes, are struggling to recover.  These issues, combined with impending staffing standards, will have a lasting impact on the healthcare system as the gap between the cost of quality care and reimbursement for that care widens. Rising costs related to workforce challenges and aging buildings and outdated physical plant designs all demand attention.

Advocacy Action 2024

118th Congress

  • Federal Minimum Staffing Standards. We support the House and Senate Protecting Rural Seniors’ Access to Care Act (H.R. 5796 / S. 3410) that would halt the proposed minimum staffing rule and instead establish an advisory panel on the nursing home workforce. We will continue to seek other legislative avenues to address this issue such as the appropriations process and use of the Congressional Review Act, which gives Congress the authority to overturn rules issued by federal agencies.
  • Observation Stays. We engaged with Congressional offices on the reintroduction of the Improving Access to Medicare Coverage Act (H.R. 5138) that would mandate that all time spent in a hospital, regardless of admission status, would count toward the 3-day qualifying stay required for SNF services under the Medicare benefit. We fully support enactment. The waiver of the 3-day stay requirement during COVID reinforces the lack of rationale for this restriction on Part A eligibility.
  • CNA Training Lock-Out. We worked with House and Senate leaders on the reintroduction of the Ensuring Seniors’ Access to Quality Care Act (H.R. 3227 / S. 1749) that would allow reinstatement of a nurse aide training program once a nursing home has been determined by CMS to be in substantial compliance. We fully support enactment. The ability of nursing homes to provide in-house training is especially critical given the workforce shortages exacerbated by the COVID-19 pandemic.
  • TNA Flexibilities. We support the Building America’s Health Care Workforce Act (H.R. 468) to enable TNAs to continue working in their current roles, and put their on-the-job experience and training toward the 75-hour federal CNA training requirement.
  • Nursing Home Transparency. We support the Nursing Home Disclosure Act (H.R. 177) that would require nursing homes to report their medical directors to CMS for display on Care Compare. While nursing homes are required to report all managing employees, some do not provide information about their medical directors.
  • Medicare Advantage Reforms. We support efforts to revise Medicare Advantage law to reduce administrative burden on providers and create some minimum expectations of plans as they contract with providers to ensure a more even playing field.  Specifically, we support the “Improving Seniors’ Timely Access to Care Act” that was passed as part of a larger bill, the Health Care Price Transparency Act (HR 4822), which would modernize and bring more transparency to the prior authorization processes utilized by MA plans.
  • Workforce. We support legislation that would ensure all staff are paid at least a living wage, staff have opportunities for training, promotion, and mobility, and the domestic and international supply of qualified staff are increased.
  • Telehealth Extension and Expansion. We support keeping certain pandemic flexibilities in place permanently and advocate for expansion of telehealth flexibilities for the future of aging services. We support the Expanded Telehealth Access Act (H.R. 3875/S. 2880) that would permanently allow audiologists, occupational therapists, physical therapists, speech language pathologist, and facilities that provide these services to bill these services via telehealth permanently and permits HHS to expand the list of providers. We also support the CONNECT for Health Act (H.R.4189 / S. 2016), having joined multiple stakeholders to provide input on this legislation prior to its introduction in both the previous and current Congresses, including the need for federal financial support to ensure nationwide interoperability of Health Information Technology – specifically in the long-term and post-acute care sector.

Executive Branch

  • Staffing Standards. We oppose staffing standards for which there is no evidence, no workforce, and no funding. We advocate for policies that would assure implemented minimum standards are based on clear, definitive evidence of the levels and types of staffing that impact quality. We work to advance initiatives that will reduce barriers to recruiting and retaining qualified, well-trained staff, including increased reimbursement that will allow nursing homes to invest in staff wages, benefits, and supports.
  • Workforce Support. We call on the Administration to provide resources to support nursing homes in developing a robust, well-trained workforce. We will work with policymakers to increase the pipeline of available healthcare professionals working in long-term care through expanded training programs and increased immigration opportunities; reduce barriers for direct care professionals to complete training and certification testing; increase opportunities for aging services providers to support direct care professionals through career pathways.
  • Medicare/Medicaid Reimbursement. We comment on annual Medicare rate adjustments, including performance-based payment programs. We engage with the Medicare Payment Advisory Commission (MedPAC) and Medicaid and CHIP Payment and Access Commission (MACPAC).
  • New models of payment and integrated care. We will continue to engage the Center for Medicare and Medicaid Integration to shape care and payment models that offer integrated care delivery and create opportunities within existing and new models for post-acute providers.
  • Survey and Certification. We call on CMS to improve consistency and accuracy in the survey and enforcement process. We support enhanced data monitoring to focus surveyor resources and advocate for CMS to strengthen surveyor accountability through enhanced oversight, evaluation, and feedback opportunities.
  • Requirements of Participation (RoPs). We urge CMS to ensure that regulations and interpretive guidance are clear and evidence-based. We advocate for regulatory and sub-regulatory changes that allow members to focus staff resources on the activity of providing quality care as opposed to draining staff resources through paper compliance and mounting reporting requirements.
  • Emergency Preparedness. We provide feedback to CMS on barriers to emergency planning and needed resources and advocate for increased collaboration with federal, tribal, state, and local entities to ensure nursing homes are included in disaster planning, response, and recovery activities.
  • Quality Measures. We promote activities to establish quality measures that are evidence-based and accurately reflect quality care. We provide feedback to CMS on proposed measures and advocate for public reporting of measures and changes to measures that are misleading or give an incomplete picture of nursing home care such as staff turnover measures and the long-stay antipsychotic measure.
  • Health Equity. We work with CMS, nursing home members, and other stakeholders to integrate practices that will help identify, evaluate, address, and remediate health disparities in the populations we serve. We support efforts that utilize accessible and understandable data that can be easily operationalized by nursing homes in their internal quality improvement work.

ACTIONS YOU CAN TAKE NOW

  • Visit the Advocacy Action Center to let your representative and senators hear your voice on the issues facing nursing homes.
  • Host Congress in Your Neighborhood to help your members of Congress understand how policies impact nursing homes and the people who live and work in them.
  • Stay up to date with LeadingAge’s nursing home work through our Nursing Home page.
  • Engage with other providers through the LeadingAge Nursing Home Network and other regular national, regional, and state meetings. Contact Janine or Jodi for more information.

LeadingAge Advocacy Goals

  • Ensure that older adults can receive health care and long-term services and supports in their homes and communities if they prefer to do so.
  • Support increased availability of PACE organization services to older adults through regulatory and statutory flexibility and investment at the federal and state levels.
  • Promote PACE across the country via new and expanded service areas and increased enrollment.
  • Advance policies that promote availability of PACE across funding streams.
  • Ensure that any LTSS models from the Center for Medicare and Medicaid Innovation include all settings in the home and community (e.g., home health and personal care, adult day other day-based services, PACE services) and provide the supports (e.g., transportation) needed to facilitate these.
  • Promote federal rulemaking that ensures access and quality home and community services for beneficiaries while minimizing provider burden.
  • Oppose block grant and per capita cap policies.

THE ISSUE

The combination of nimble service delivery, stable reimbursement, and the ability of PACE to keep older adults in their homes and communities make the model attractive to participants, payer (e.g., Medicare and Medicaid), and PACE organizations thought it isn’t broadly available to participants in all areas of the country.

Federal barriers exist that limit the growth and availability of PACE, including the optional status of all home and community-based services (waiver, state plan, PACE) as Medicaid benefit categories, month-start enrollments, and the lack of an HCBS-centered model from the CMS Innovation Center.

Workforce is a key priority for our members, yet workers providing PACE organizations with home health, personal care, and other services in recipient homes face unique and unexpected challenges that often include hoarding, difficult family dynamics, under resourced communities and increasing incidents of threats to personal safety. Staff, willingly take on these challenges as part of providing individual care in the field without the immediate support of coworkers and supervisors.

Advocacy Action 2024

118th Congress

  • Duals Demonstration. Advocate for PACE providers to as remain stand-alone options for participants in the event of any state or federal mandate of separate models of fully integrated care.
  • Medicaid FMAP. We support an increase in the Federal Medical Assistance Percentage (FMAP) for Medicaid HCBS by 10 percentage points to ensure states have the funds needed to expand and sustain these services. HCBS Relief Act of 2023–S.3118
  • Benefit categories. We ask Congress to revise Medicaid and put HCBS (including waiver and state plan services and PACE) on equal footing with nursing homes and make HCBS a mandatory Medicaid benefit. HCBS Access Act –S.762 – Senator Bob Casey (D-PA); H.R. 1493 – Congresswoman Debbie Dingell (D-MI-6)
  • Appropriations. We support increasing funding for key provisions that support HCBS, including Older Americans Act services.
  • Leveling Enrollment Options. The requirement that PACE Organizations may only enroll new participants on the first of the month limits access for individuals that need services more rapidly. We support reintroduction of the PACE Expanded Act- Representatives Debbie Dingell (MI-06) and John Moolenaar (MI-02)- Text from last session
  • PACE Part D Choice Act. We support passage of S.1703 – Senator Thomas Carper (D-DE) and H.R.3549 Congressman Brad Wenstrup (R-OH-2)
  • Better Care Better Jobs Act. S.100 – Senator Bob Casey (D-PA); H.R. 547 – Congresswoman Debbie Dingell (D-MI-6)

Executive Branch

  • Enrollment and Expansion Support. Onerous regulations that limit PACE enrollment to the first of the month and prohibit providers from having multiple expansion proposals open simultaneously unnecessarily stifle PACE growth.
  • Protect Medicaid financing. We oppose any Medicaid waiver or rulemaking that reduces federal funding to the program, as these could ultimately jeopardize PACE access. To that end, CMS should not approve and/or rescind waivers that allow per capita caps/block grant financing, work requirements, and unnecessary coverage/enrollment barriers. CMS should not propose rulemaking similar to the 2019 Medicaid Fiscal Accountability Regulation (MFAR).
  • Innovation Center models. We will closely monitor CMMI action to ensure that home and community-based services of all types are included as part of the proposed LTSS Innovation Fund and in other models.

ACTIONS YOU CAN TAKE NOW

  • Visit the Advocacy Action Center to let your Representative and Senators know you support the expansion and preservation of PACE programs for older adults.
  • Host Congress in Your Neighborhood to help your Members of Congress understand how policies impact providers and beneficiaries.
  • Stay up to date with LeadingAge’s PACE work through our Adult Day, PACE, and HCBS page.
  • Engage with other PACE providers through the LeadingAge PACE Network and other regular national, regional, and state meetings. Contact Georgia for more information.

LeadingAge Advocacy Goals

  • Federal and state regulatory and payment policies must recognize and accommodate challenges facing rural providers, including the special challenges rural providers face that have been exacerbated by the pandemic.
  • Ensure that rural aging services organizations have the financial resources to be able to hire and retain enough high-performing staff at all levels.
  • We oppose staffing standards for which there is no evidence, no workforce, and no funding. We advocate for policies that would assure minimum standards are based on clear, definitive evidence of the levels and types of staffing that impact quality.
  • We work to advance initiatives that will reduce barriers to recruiting and retaining qualified, well-trained staff, including increased Medicaid and Medicare reimbursement that will allow nursing homes to invest in staff wages, benefits, and supports.
  • Promote policies that address the lack of affordable transportation for staff in rural areas and that support older persons’ mobility and independence.
  • Support improving access to affordable broadband in rural and frontier communities so that aging services providers can better reach the people they serve and provide additional services to older adults.
  • Support increased Medicaid funding and Medicare rural add-ons for aging services.
  • Replicate programs and models that hold promise.

THE ISSUE

Rural aging services providers face the same financing and policy challenges that all other providers face, but these challenges are magnified by distance and loss of population. All these challenges were exacerbated by the pandemic and its devastating toll on workers, older adults, and rural economies. Transportation, housing, workforce shortages, care coordination, telehealth, technology, and internet challenges, along with inadequate public financing, raise significant public policy challenges. As populations shift to urban areas, these problems are exacerbated. And yet our aging services members form the backbone of many rural areas, providing care, services, and employment. We have members across the continuum (nursing homes, home health agencies, and others) that have closed and others in the verge of closure. If and when closures occur, communities and the older adults remaining in them, face losing the provider within driving distance in many cases—whether that is a nursing home or housing community where friend and family can easily visit or a provider that will actually come out to the home in these communities.

Advocacy Action 2024

118th Congress

  • Rural Internet access. We support legislation to help improve high-speed internet access in rural areas. Extend the subsidized broadband connectivity rates available for certain health care providers in rural areas under the FCC’s Rural Health Care Program to additional aging services providers by amending the Social Security Act (as was done in the 2015 Rural Connectivity Act, which added nursing homes to the definition of healthcare providers).
  • Workforce. We support legislative efforts to ensure that aging services workers earn at least a living wage and have opportunities for professional development. We support efforts to increase the pool of qualified applicants domestically and internationally.
  • Medicaid reimbursement.  We support permanently increasing the Federal Medical Assistance Percentage (FMAP) for all aging services/long-term care providers. We would like to see these increases, at least in part, reimburse aging services providers at a level that allows them to pay workers a living wage.
  • Critical Access Nursing Homes. We support a proposal to create a federally recognized Critical Access Nursing Home, similar to the Critical Access Hospital program to prevent additional closures of nursing homes in rural areas (and potentially other areas with minimal access) and ensure that community residents have access to the care they need close to home. We support considering this concept in other aging services settings as well.
  • Telehealth. We support legislation to improve access to telehealth services across the continuum of aging services and allow pandemic era flexibilities to be implemented permanently.
  • Reinstate CNA training programs within SNFs. We support repealing the CNA training “lock-out” and reinstating training programs when SNFs are in compliance.
  • Expanded use of nurse practitioners and physician assistants in hospice. We support a legislative fix that would allow nurse practitioners and physician assistants to certify the terminal prognosis as clinically appropriate. We also support seeking legislative fixes to the statute to clarify the role of physician assistants (PAs) in hospice and to allow PAs to provide face-to-face encounters.
  • Reinstate Medicare home health rural add-on payments. We support legislative efforts that would make permanent the add-on for services to rural patients.
  • Ensure critical access hospital payment policy does not interfere with post-acute care access. We will advocate that Congress examine the incentives between critical access hospitals and post-acute care to ensure payment incentives are aligned so post-acute care can survive independent of the CAH and to eliminate existing barriers to collaboration between CAHs and nursing homes, hospice, and PACE.

Executive Branch

  • Staffing Standards. We oppose staffing standards for which there is no evidence, no workforce, and no funding. We advocate for policies that would assure minimum standards are based on clear, definitive evidence of the levels and types of staffing that impact quality.
  • Workforce. We work to advance initiatives that will reduce barriers to recruiting and retaining qualified, well-trained staff, including increased Medicaid and Medicare reimbursement that will allow nursing homes to invest in staff wages, benefits, and supports.
  • Oversight. We call on CMS to improve consistency and accuracy in the survey and certification process as well as ensure appropriate and targeted oversight via the audit process.
  • Rural Service Coordination. We support the U. S. Department of Agriculture (USDA) to launch Service Coordination in Rural Development-subsidized rental housing, including by establishing internal processes for program funding approval and external strategies for communication and marketing with housing stakeholders.
  • Implement recommendations to expand PACE in rural areas. The National Advisory Committee on Rural Health and Human Services examined barriers to PACE in rural areas made a number of recommendations—we concur with them and advocate to implement them.
  • Transportation and Medicaid. We support the maintenance of current rulemaking that assigns non-emergency medical transportation (NEMT) as a mandatory Medicaid benefit; we also support additional action to ensure greater access to transportation in rural areas.
  • CMMI and Rural Models of Care. We will encourage CMMI to look at funding models that replicate successful rural centric coordinated care models.

ACTIONS YOU CAN TAKE NOW

  • Visit the Advocacy Action Center to let your representative and senators hear your voice on policy related to aging services in rural areas.
  • Host a Congress in Your Neighborhood (leadingage.org)  in your community to help your Members of Congress understand the challenges and opportunities in providing aging services in rural areas and policy changes they can make to address them.

LeadingAge Advocacy Goals

  • Maintain current nonprofit tax status for LeadingAge members as 501(c)(3) exempt organizations.
  • Enhance Low Income Housing Tax Credit program to broaden its availability for use in developing affordable housing for seniors.
  • Support charitable deductions through tax deductions.
  • Support the deductibility of medical expenses at 7.5% of adjusted gross income.
  • Support tax credit incentives that help aging services providers continue to recover from COVID-era expenses and that promote the utilization of innovative technologies to improve the well-being of older adults and the communities in which they live.

THE ISSUE

In addition to organizational-level tax exemption, federal tax laws have various incentives to support charitable institutions, such as allowing individuals to deduct charitable contributions and a certain amount of medical expenses from their tax returns, encouraging investment in housing through tax credits, and incentivizing other activities such as installation of energy efficient systems. Tax-exempt organizations rely on these mechanisms to support their philanthropic missions and outreach and their ability to address low-income housing needs.

Advocacy Action 2024

118th Congress

We will support and advocate for tax changes that will positively impact members.  Those efforts will include the introduction and support of bills on the following topics:

  • Low-Income Housing Tax Credits. We support the efforts that would increase state LIHTC allocations by 50%, provide a 50% basis boost for LIHTC communities that serve households with extremely low incomes in at least 20% of their apartments, and lower the bond financing threshold from 50% to 25% to make more efficient use of existing Private Activity Bond resources. Each of these provisions are in the Affordable Housing Credit Improvement Act (H.R. 3238 and S. 1557), which LeadingAge supports. We also support the expansion of Housing Credit units that are accessible through the Visitable Inclusive Tax Credits for Accessible Living (VITAL) Act (H.R. 3963 and S. 1377), and the replacement of the current right of first refusal with a purchase option to facilitate the ability of nonprofits to maintain ownership/control of housing credit properties beyond Year 15.
  • Charitable Contributions. We support efforts, such as this bill from a prior Congress, to maintain the incentive for and encourage charitable giving and provide for an “above-the-line” income tax deduction for charitable contributions and thus likely would improve the expected decline in charitable giving because of the increase in the amount of the standard deduction for tax years 2018-2025 under the 2017 Tax Cuts and Jobs Act (TCJA).
  • Medical Expense Tax Deduction. We support maintenance of the current standard that allows deduction of unreimbursed medical expenses that exceed 7.5% of adjusted gross income, versus a higher threshold that would negatively impact seniors.

Executive Branch

  • Employee Retention Credit. We support and will continue to monitor the full implementation of the Employee Retention Credit (ERC) to offset the unprecedented rise in the workforce costs, both during and after the COVID-19 pandemic, for aging services providers. We advocate that the ERC be extended to include the 2022 tax year for aging services providers who continued to be faced with overwhelming labor costs related to the pandemic. We support the ongoing claims submission and receipt process established by the ERC and will continue to work with IRS-issued guidance to enable eligible members to claim funds available to them through this program.  We also advocate that the redemption of the ERC not be a part of cost-reporting for the calculation of Medicare or Medicaid reimbursement.
  • Inflation Reduction Act. We support and monitor the full implementation of the Inflation Reduction Act to include the not-for-profit aging services sector across the entire continuum of providers, and especially for those providers that serve older adults in rural, disadvantaged and economically suppressed regions.
  • TCJA. We will continue to monitor efforts and/or guidance to provide clarity on tax changes as a result of the 2017 Tax Cuts and Jobs Act.

ACTIONS YOU CAN TAKE NOW

  • Continue social accountability efforts to document how your organization gives back to the broader community and fulfills its responsibilities as a tax-exempt entity.
  • Visit the Advocacy Action Center to identify opportunities to let your Representative and Senators know your position on tax legislation.
  • Host Congress in Your Neighborhood to help your Members of Congress understand how policies impact affordable senior providers and residents.

ADDITIONAL RESOURCES

LeadingAge Advocacy Goals

  • Advocate for permanent changes to Medicare, Medicaid, and commercial payer telehealth policy based on lessons learned from the pandemic.
  • Ensure all aging services providers are included in future permanent telehealth expansions.
  • Permanently remove Medicare’s restrictions of patients’ homes as an originating site for audio-only, synchronous audio-only, and asynchronous biometric remote patient monitoring (RPM) and for individuals with chronic conditions living independently, and for individuals with chronic conditions living independently but helped by home health clinicians. Also, promote the use of synchronous audio-video telehealth in skilled nursing homes and assisted living communities.
  • Create an equitable payment policy for the post-pandemic era that balances providers’ costs with patient protections.
  • Promote the adoption of interoperable electronic health records, including funding and technical support.
  • Promote the use of standards-based health information exchange between aging services providers and their partners including primary/acute care providers and payers.
  • Ensure equitable internet connectivity for all aging services providers and older adults, including in affordable housing where Wi-Fi access should be federally funded.
  • Promote policies that support the use of technology to reduce social isolation.

Health IT Incentives:

Secure government funding for the Office of National Coordinator (ONC) at the U.S. Department of Health and Human Services (HHS) to:

  • Establish electronic health record (EHR) Interoperability Certification Criteria/Program relevant to long-term, post-acute care (LTPAC) providers, but aligned, where possible, with the acute care certification program.
  • Establish health IT education and training for staff in LTPAC providers, like the Regional Extension Centers (RECs) that supported small physician practices.
  • Fund technical assistance resource centers to provide technical assistance for LTPAC providers, like the RECs that supported small physician practices.
  • Direct financial incentives for LTPAC Providers (SNFs/NFs, home health, hospice, long-term acute care hospitals (LTACHs), in-patient rehabilitation facilities (IRFs) to:
    • Upgrade to interoperable EHR technology;
    • Upgrade their infrastructure and broadband connectivity;
    • Subscribe and connect to health information exchange entities or networks, and add technically competent staff to support use;
    • Conditional Sustainable Use financial incentives/payment modifiers that, tied to quality measures, would be impacted by effective exchange of health information with partners for the next five years.

Access to Broadband:

  • Extend the subsidized broadband connectivity rates available for certain health care providers in rural areas under the FCC’s Rural Health Care Program to additional aging services providers by amending the Social Security Act (as was done in the 2015 Rural Connectivity Act, which added nursing homes to the definition of healthcare providers).
  • Create funding opportunities for congregate affordable low-income housing providers to collectively apply for and receive broadband internet connectivity to the building and to their residents’ units, to ensure equitable access to services.

THE ISSUE

Massively increased flexibilities, particularly in the Medicare program, making it possible to utilize technology to deliver all types of care became an essential lifeline for our health care system during the pandemic, a time of unparalleled challenges and strains. If there is any “silver lining” to the pandemic, it has been an increase in the use of technology to deliver appropriate and timely care to keep people safe, healthy, and well-connected.

The ability to use telehealth during the COVID-19 emergency was vitally important not only to protecting staff and patients’ health, but also to expanding the reach of overextended health care personnel. Waivers in Medicare rules that allowed the home to be an originating site of care, expanded the types of technology that can be used for telehealth visits (e.g., Facetime and even audio-only in some cases) and expanded the types of providers that can bill for telehealth services were all significant changes from the pre-pandemic state of play and have proven to be valuable in many ways.

The ongoing question is how to capitalize on the progress made and lessons learned during the pandemic, which in many ways has served as the “demo” of telehealth that many have asked for in the past. Concerns for the future include how to make sure that telehealth is incorporated into practice in an equitable, cost-effective (for both the government and providers), and accessible way. What is clear is that we need to continue moving forward.

In addition to making permanent many of the pandemic flexibilities, aging services providers need policies that support their ability to adequately pay their staff. These staff can either deliver interventions, including therapy via under a physician-approved care plan, or can assist a remote physician during an asynchronous telemedicine visit. Moreover, providers need support to maintain and upgrade technology. Hence, they need adequate reimbursement from all payer sources to sustain and maintain the investments they already made in delivering care via telehealth.

Broadband investment, especially in rural and underserved areas, is critical to making sure telehealth is an accessible service nationwide—including in affordable senior housing communities, many of which lack connectivity and where federal investment in wireless internet capability is imperative. Continued investment in broader health information technology to support information management and the secure exchange of health information are also critically important and need to be inclusive of aging services providers.

Finally, those providers who treat patients in their own home—like home health, hospice, and PACE—who have not been able to take full advantage of the affordable internet connectivity like healthcare peers in rural areas, or telehealth in the past, or even the expanded telehealth flexibilities, need to be included.

Advocacy Action 2024

118th Congress

  • LeadingAge supports the Creating Opportunities Now for Necessary and Effective Care Technologies (CONNECT) for Health Act of 2023 (H.R.4189/S. 2016), which addresses many of our policy priorities noted below and supports the use of telehealth models to improve care across the continuum of aging services.  LeadingAge joined multiple stakeholders to provide input on this legislation prior to its introduction in both the previous and current Congresses, including the need for federal financial support to ensure nationwide interoperability of Health Information Technology – specifically in the long-term and post-acute care sector. Outside of the coalition effort, we also asked that the CONNECT for Health Act include reimbursement for telehealth in the home health program and that audio only visits count toward risk adjustment for PACE providers. The updated CONNECT for Health Act of 2023 would build on that by expanding coverage of telehealth services through Medicare and making permanent the COVID-19 telehealth flexibilities that the 2023 Consolidated Appropriations Act extended through 2024, including permanently removing all geographic restrictions on telehealth services and expansion of originating sites to include the home and other sites; allowing more eligible health care professionals to utilize telehealth services; removing unnecessary in-person visit requirement for tele-mental health services; and permanently authorize hospice face to face recertification to take place via telehealth.
  • Keeping key pandemic flexibilities. We support keeping the following pandemic flexibilities in place permanently:
    • Permanently removing the geographic restrictions on telehealth;
    • Allowing the home to be an originating site of care beyond the COVID-19 public health emergency (PHE);
    • Permanent expansion of the providers who can furnish telehealth services relating to both physical and mental health.
      • LeadingAge supports the bi-partisan Expanded Telehealth Access Act (H.R. 3875/S. 2880) which would permanently allow audiologists, occupational therapists, physical therapists, speech language pathologist, and facilities that provide these services to bill these services via telehealth permanently and permits HHS to expand the list of providers.
    • Continued flexibility in the type of modality allowable for video-audio connections (e.g., allowing the use of FaceTime or other smartphone technology) to utilize all tools available, including audio-only, to deliver telehealth services as appropriate and look to work with Congress on the intersection of accessibility and privacy (e.g., HIPAA concerns).
  • Hospice face-to-face recertification. We support allowing the hospice face-to-face recertification to take place via telehealth on a permanent basis.
  • Reimbursement for home health telehealth visits. We support legislative efforts that allow virtual home health visits to be reimbursed under Medicare with appropriate guardrails.
  • PACE and telehealth. We support legislation that would allow audio-only diagnoses that are made via telehealth to be used for purposes of determining risk adjustment to payments for PACE and Medicare Advantage programs.
  • Housing and technology. We support federal funding for the installation and service fees for wireless broadband internet in all HUD-assisted senior housing community units.
  • Meaningful use. Aging services providers were not included in previous funding efforts that supported health care providers’ transition to electronic health records (EHR) systems that contain the medical and treatment histories of patients. We will continue to advocate for funding and payment incentives, including incentives tied to quality, to assist aging services providers in accessing EHR technology that is interoperable with that of their physician and hospital partners and peers and encourage the bi-directional exchange of information.
  • Affordable rural internet connectivity foraging services providers. We support legislative action aimed at expanding the scope of the 2015 Rural Healthcare Connectivity Act, which added nursing homes to the definition of healthcare providers that may access subsidized broadband connectivity, to include home health, hospice, and other aging services providers in the home and community. Such action would allow all aging services providers to benefit from lower internet connectivity costs offered to acute care and nursing homes.

Executive Branch

  • CMS-commissioned study on telehealth services. HHS announced in a December 2021 research report massive increases in the use of telehealth helped maintain some health care access during the COVID-19 pandemic. The report also provides insights into telehealth visits conducted in 2020, which increased 63-fold from approximately 840,000 in 2019 to 52.7 million. Additionally, the report found: specialists such as behavioral health providers saw the highest utilization relative to other providers; telehealth services were accessed more in urban areas than rural communities; and Black Medicare beneficiaries were less likely than White beneficiaries to utilize telehealth. In light of this report, LeadingAge encourages CMS to continue to focus on improving health equity in telehealth services as highlighted by the COVID-19 PHE and to expand access among underserved populations.
  • CMS Extension of Telehealth Flexibilities. LeadingAge supported CMS’s inclusion in the Calendar Year 2024 Physician Fee Schedule Final Rule of regulations implementing the extension of various COVID-19 PHE telehealth flexibilities (in alignment with the Consolidated Appropriations Act of 2023) through December 31, 2024.  Among others, these flexibilities include:
    • temporarily removing geographic and site requirements for the patient location at the time a telehealth interaction occurs, allowing beneficiaries to receive services at home.
    • temporarily allowing a more expansive list of eligible providers in Medicare to provide services via telehealth such as physical and occupational therapists; and
    • temporarily allowing outpatient therapy services delivered by institutional providers—including skilled nursing facilities, and home health agencies (to individuals who are not homebound) —to be furnished via telehealth, including to beneficiaries in their homes.
    • LeadingAge will continue to advocate for CMS to review the telehealth and technology waivers established during the PHE to identify which can be made permanent without Congressional action, including utilization of telehealth for hospice routine home care visits and flexibility in licensure requirements in the Medicare and Medicaid program.
  • Remote patient monitoring. LeadingAge will work to ensure that all appropriate aging services providers can utilize and bill for asynchronous remote patient monitoring, which is critical and effective tool to support the health of individuals with chronic conditions.
  • Advocate for the creation of claims codes or modifiers to document hospice virtual visits. Hospice providers utilized telehealth for routine home care during the COVID-19 PHE. We will advocate for the creation of claims codes or modifiers that will allow for the analysis of these encounters for a variety of purposes including quality measurement.
  • Advocate for the use of data from new claims codes documenting home health virtual visits. Home health providers are allowed to use virtual visits as part of their documented plan of care. We will advocate for the analysis of the recently created G-Codes for these encounters for a variety of purposes including quality measurement.
  • Advocate for allowing home health nurses to bill for services. Therapists and other appropriately licensed professionals are allowed to use telehealth and home health agencies to bill for such services beyond the pandemic. Remote patient and medication adherence monitoring improve chronic care management, reduce hospitalizations, hospital stay, and readmissions, and consequently reduce cost. Chronic care management reimbursement codes currently exist for physicians, physician assistants, and nurse practitioners, but are woefully underutilized. We will advocate for the creation of claims codes or modifiers that will allow the appropriate staff at home health agencies to perform, and for agencies to bill for, a variety of appropriate chronic care management and therapy interventions approved by a physician’s plan of care using telehealth, including remote patient and medication adherence monitoring technologies.
  • Make demonstrations include telehealth. New and current CMS demonstrations should include waivers to allow for the broad utilization of telehealth and technology. We will advocate for CMMI to continue to build the evidence for the role these areas will continue to play in healthcare delivery.
  • Affordable Connectivity Program. Ensuring that all older adult federally assisted housing residents have access to quality, affordable internet is an on-going policy priority. In August 2023, HUD and the Federal Communications Commission (FCC) announced a new partnership to urge HUD-assisted residents to enroll in the Affordable Connectivity Program (ACP), which provides discounts on monthly internet service, and LeadingAge will continue to advocate for HUD to streamline enrollment of HUD multifamily residents in the ACP.
  • Tele-Prescribing of Controlled Medications.  In response to COVID, the Drug Enforcement Agency (DEA) granted temporary exceptions under the Ryan Haight Online Pharmacy Consumer Protection Act that allowed healthcare providers to prescribe certain controlled substances via telemedicine without the need for an in-person examination, for the duration of the COVID-19 PHE.  The DEA has issued a temporary rule extending these flexibilities through November 11, 2024. However, the agency is working to finalize a separate, permanent rule that, as proposed, would be more restrictive than the flexibilities in place during the PHE.  LeadingAge is advocating for DEA to allow patients enrolled in hospice and palliative care, as well as nursing home residents, to be included in the exemptions as authorized under the Ryan Haight Act.

ACTIONS YOU CAN TAKE NOW

  • Visit the Advocacy Action Center to identify opportunities to let your Representative and Senators know your views on eliminating barriers to the utilization and expansion of telehealth services in the Medicare program and other technology policy issues.
  • Host Congress in Your Neighborhood to help your Members of Congress understand how policies related to technology and telehealth models in Medicare affect older adults.

ADDITIONAL RESOURCES